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. 2020 May 1;2020(55):89-95.
doi: 10.1093/jncimonographs/lgz035.

Development and Evaluation of a Process to Link Cancer Patients in the SEER Registries to National Medicaid Enrollment Data

Joan L Warren  1 , Suzie Benner  2 , Jennifer Stevens  3 , Lindsey Enewold  1 , Bin Huang  4 , Lirong Zhao  5 , Negussie Tilahun  1 , Cathy J Bradley  6
Affiliations

Development and Evaluation of a Process to Link Cancer Patients in the SEER Registries to National Medicaid Enrollment Data

Joan L Warren et al. J Natl Cancer Inst Monogr. .

Abstract

Cancer patients receiving Medicaid have worse prognosis. Patients in 14 Surveillance, Epidemiology, and End Results (SEER) cancer registries were linked to national Medicaid enrollment files, 2006-2013, to determine enrollment status during the year before and after diagnosis. A deterministic algorithm based on Social Security number, Medicare Health Insurance Claim number, sex, and date of birth was utilized. Results were compared with an independent linkage of Kentucky-based SEER and Medicaid data. A total 559 484 cancer cases were linked to national Medicaid enrollment files, representing 15-17% of persons with cancer yearly. About 60% of these cases were a complete match on all variables. There was 99% agreement on enrollment status compared with the Kentucky linked data. SEER data were successfully linked to national Medicaid enrollment data. NCI will make the linked data available to researchers, allowing for more detailed assessments of the impact Medicaid enrollment has on cancer diagnosis and outcomes.

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Figures

Figure 1.
Figure 1.
Process of linking persons in the Surveillance, Epidemiology, and End Results (SEER) data diagnosed with cancer, 2007 to 2013, to persons in each State’s Medicaid Personal Summary (PS) file. HIC = Health Insurance Claim; MSIS = Medicaid Statistical Information System; SSN = Social Security number.
Figure 2.
Figure 2.
Scoring weights assigned to each variable used to calculate the strength of the match between persons in the SEER data and the Medicaid Personal Summary file. DOB = date of birth; HIC = Health Insurance Claim; SSN = Social Security number.
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