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. 2020 Jan 13;11(3):209-217.
doi: 10.1136/flgastro-2019-101321. eCollection 2020.

Patient experience of gastrointestinal endoscopy: informing the development of the Newcastle ENDOPREM™

Laura J Neilson  1   2 , Joanne Patterson  2   3 , Christian von Wagner  4 , Paul Hewitson  5 , Lesley M McGregor  6 , Linda Sharp  7 , Colin J Rees  1   7
Affiliations

Patient experience of gastrointestinal endoscopy: informing the development of the Newcastle ENDOPREM™

Laura J Neilson et al. Frontline Gastroenterol. .

Abstract

Background: Measuring patient experience is important for evaluating the quality of patient care, identifying aspects requiring improvement and optimising patient outcomes. Patient Reported Experience Measures (PREMs) should, ideally, be patient derived, however no such PREMs for gastrointestinal (GI) endoscopy exist. This study explored the experiences of patients undergoing GI endoscopy and CT colonography (CTC) in order to: identify aspects of care important to them; determine whether the same themes are relevant across investigative modalities; develop the framework for a GI endoscopy PREM.

Methods: Patients aged ≥18 years who had undergone oesophagogastroduodenoscopy (OGD), colonoscopy or CTC for symptoms or surveillance (but not within the national bowel cancer screening programme) in one hospital were invited to participate in semi-structured interviews. Recruitment continued until data saturation. Inductive thematic analysis was undertaken.

Results: 35 patients were interviewed (15 OGD, 10 colonoscopy, 10 CTC). Most patients described their experience chronologically, and five 'procedural stages' were evident: before attending for the test; preparing for the test; at the hospital, before the test; during the test; after the test. Six themes were identified: anxiety; expectations; choice & control; communication & information; comfort; embarrassment & dignity. These were present for all three procedures but not all procedure stages. Some themes were inter-related (eg, expectations & anxiety; communication & anxiety).

Conclusion: We identified six key themes encapsulating patient experience of GI procedures and these themes were evident for all procedures and across multiple procedure stages. These findings will be used to inform the development of the Newcastle ENDOPREM™.

Keywords: CT; colonoscopy; endoscopy; gastroscopy.

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Conflict of interest statement

Competing interests: CR has received grant funding from ARC medical, Norgine and Olympus medical. He was an expert witness for ARC medical.

Figures

Figure 1
Figure 1
Development of the Newcastle ENDOPREM™ flow chart.
Figure 2
Figure 2
Themes according to procedure stage.
See this image and copyright information in PMC

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