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Review
. 2020 May 22;20(7):18.
doi: 10.1007/s11910-020-01043-5.

Caregiver Burden in Multiple Sclerosis: Recent Trends and Future Directions

Rebecca Maguire  1 , Phil Maguire  2
Affiliations
Review

Caregiver Burden in Multiple Sclerosis: Recent Trends and Future Directions

Rebecca Maguire et al. Curr Neurol Neurosci Rep. .

Abstract

Purpose of review: In spite of recent advances in treatment, many people with multiple sclerosis (MS) require ongoing care and support. Informal caregivers can experience burden as a result of their role, with possible implications for quality of life (QOL). We review recent research examining MS caregiver experience to (1) understand current risk factors for caregiver burden and (2) identify possible strategies for increasing carer well-being.

Recent findings: MS caregiver experience is highly variable and can be predicted by a variety of care recipient, caregiver and contextual factors. Burden is not the only characteristic associated with care, with positive consequences also reported. Emerging research suggests a number of ways in which carers can be better supported. Identifying and meeting the needs of MS caregivers offers the best way of delivering tailored support. Future research should focus on the development of psychosocial supports, while acknowledging the needs of those caring for different MS patient populations.

Keywords: Burden; Caregivers; Informal carers; Multiple sclerosis; Psychological adjustment; Social support.

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Conflict of interest statement

The authors declare that they have no conflict of interests.

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