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Review
. 2020 Sep;35(10):681-689.
doi: 10.1177/0883073820923809. Epub 2020 Jun 4.

Measuring Health-Related Quality of Life in Pediatric Neurology

Monica E Lemmon  1   2   3 , Hanna E Huffstetler  2 , Bryce B Reeve  1   3   4
Affiliations
Review

Measuring Health-Related Quality of Life in Pediatric Neurology

Monica E Lemmon et al. J Child Neurol. 2020 Sep.

Abstract

Health-related quality of life (HRQOL) is central to how clinicians and parents make choices about medical care for pediatric neurology patients. To provide parents with the information they need to make these decisions and plan for the future, it is necessary for parents and clinicians to understand how HRQOL is defined and measured in the setting of pediatric neurodevelopmental impairment. We review challenges that exist in measuring HRQOL in pediatric neurology, examine existing measures, and outline key principles to guide selection and interpretation of HRQOL measures in children with neurologic conditions.

Keywords: health-related quality of life; neurology; pediatrics.

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Conflict of interest statement

Declaration of conflicting interests: The authors have no conflicts of interest to disclose.

Figures

Figure 1.
Figure 1.
Considerations and guiding questions for choosing HRQOL instruments
See this image and copyright information in PMC

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