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. 2020 Oct;28(10):1301-1304.
doi: 10.1038/s41431-020-0663-3. Epub 2020 Jun 8.

Professional duties are now considered legal duties of care within genomic medicine

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Professional duties are now considered legal duties of care within genomic medicine

Middleton Anna et al. Eur J Hum Genet. 2020 Oct.

Abstract

The legal duty to protect patient confidentiality is common knowledge amongst healthcare professionals. However, what may not be widely known, is that this duty is not always absolute. In the United Kingdom, both the General Medical Council governing the practice of all doctors, as well as many other professional codes of practice recognise that, under certain circumstances, it may be appropriate to break confidentiality. This arises when there is a wider duty to protect the health of others, and when the risk of non-disclosure outweighs the potential harm from breaking confidentiality. We discuss this situation specifically in relation to genomic medicine where relatives in a family may have differing views on the sharing of familial genetic information. Overruling a patient's wishes is predicated on balancing the duty of care towards the patient versus protecting their relative from serious harm. We discuss the practice implications of a pivotal legal case that concluded recently in the High Court of Justice in England and Wales, ABC v St Georges Healthcare NHS Trust & Ors. Professional guidance is already clear that genetic healthcare professionals must undertake a balancing exercise to weigh up contradictory duties of care. However, the judge has provided a new legal weighting to these professional duties: 'The scope of the duty extends not only to conducting the necessary balancing exercise but also to acting in accordance with its outcome' [1: 189]. In the context of genomic medicine, this has important consequences for clinical practice.

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Conflict of interest statement

AM has a contract to do paid consulting work on ethics and genetic counselling to Congenica and Raremark.

References

    1. ABC v St George’s Healthcare NHS Trust, South West London and St George’s Mental Health NHS Trust, Sussex Partnership NHS Foundation Trust (2020) EWHC 455 (QB). Case No: QB-2013-009529. In the High Court of Justice Queen’s Bench.
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    1. Joint Committee of Genomics in Medicine including the Royal College of Physicians, Royal College of Pathologists, British Society for Genetic Medicine. Consent and Confidentiality in Genomic Medicine. 3rd Edition, 2019. https://www.rcplondon.ac.uk/projects/outputs/consent-and-confidentiality.... Accessed 3 Feb 2020.

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