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. 2020 Dec;26(4):2689-2706.
doi: 10.1177/1460458220928184. Epub 2020 Jun 20.

How patient-generated health data and patient-reported outcomes affect patient-clinician relationships: A systematic review

Ross J Lordon, Sean P Mikles  1 , Laura Kneale  2 , Heather L Evans  3 , Sean A Munson  4 , Uba Backonja  5 , William B Lober  6
Affiliations

How patient-generated health data and patient-reported outcomes affect patient-clinician relationships: A systematic review

Ross J Lordon et al. Health Informatics J. 2020 Dec.

Abstract

Introduction: Many patients use mobile devices to track health conditions by recording patient-generated health data. However, patients and clinicians may disagree how to use these data.

Objective: To systematically review the literature to identify how patient-generated health data and patient-reported outcomes collected outside of clinical settings can affect patient-clinician relationships within surgery and primary care.

Methods: Six research databases were queried for publications documenting the effect of patient-generated health data or patient-reported outcomes on patient-clinician relationships. We conducted thematic synthesis of the results of the included publications.

Results: Thirteen of the 3204 identified publications were included for synthesis. Three main themes were identified: patient-generated health data supported patient-clinician communication and health awareness, patients desired for their clinicians to be involved with their patient-generated health data, which clinicians had difficulty accommodating, and patient-generated health data platform features may support or hinder patient-clinician collaboration.

Conclusion: Patient-generated health data and patient-reported outcomes may improve patient health awareness and communication with clinicians but may negatively affect patient-clinician relationships.

Keywords: patient reported outcomes; patient-generated health data; primary care; professional-patient relations [Mesh]; surgery.

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Conflict of interest statement

Declaration of conflicting interests

The author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.

Figures

Figure 1.
Figure 1.
Preferred reporting items for systematic review and meta-analyses (PRISMA) diagram depicting the flow of information through the systematic review.
See this image and copyright information in PMC

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