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. 2020 Apr 22;7(4):1260-1268.
doi: 10.1002/nop2.503. eCollection 2020 Jul.

Barriers to home-based palliative care in people with cancer: A qualitative study of the perspective of caregivers

Hadi Hassankhani  1   2 , Azad Rahmani  2   3 , Amy Best  4 , Fariba Taleghani  5 , Zohreh Sanaat  6   7 , Javad Dehghannezhad  2   8
Affiliations

Barriers to home-based palliative care in people with cancer: A qualitative study of the perspective of caregivers

Hadi Hassankhani et al. Nurs Open. .

Abstract

Aim: To investigate the barriers to home-based palliative care for cancer patients from professional caregivers' experiences.

Design: A qualitative study.

Method: This is a descriptive-qualitative study carried out in the community-based care. Twenty-three participants took part in this study. Data were collected through semi-structured interviews.

Results: Data analysis led to the identification of three category of barriers including the lack of instructions (the lack of clinical practice guidelines, the ambiguity of tariffs and the lack of insurance coverage), family desperation (family views of prognosis, distrust and poverty) and lack of professionalism (limited knowledge, the use of amateur nurses and siloed care). Developing a care protocol and providing resources support contribute to the development of home-based palliative care. Moreover, the education of families and training courses for nurses must be fostered.

Keywords: barriers; cancer; care; home; nurses; nursing; palliative.

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Conflict of interest statement

All authors have no conflicts of interest.

References

    1. Arnold, E. , Finucane, A. M. , & Oxenham, D. (2015). Preferred place of death for patients referred to a specialist palliative care service. BMJ Supportive & Palliative Care, 5(3), 294–296. 10.1136/bmjspcare-2012-000338 - DOI - PMC - PubMed
    1. Azzani, M. , Roslani, A. C. , & Su, T. T. (2015). The perceived cancer‐related financial hardship among patients and their families: A systematic review. Supportive Care in Cancer, 23(3), 889–898. 10.1007/s00520-014-2474-y - DOI - PubMed
    1. Bowman, B. A. , Twohig, J. S. , & Meier, D. E. (2019). Overcoming barriers to growth in home‐based palliative care. Journal of Palliative Medicine, 22(4), 408–412. 10.1089/jpm.2018.0478 - DOI - PubMed
    1. Bray, F. , Ferlay, J. , Soerjomataram, I. , Siegel, R. L. , Torre, L. A. , & Jemal, A. (2018). Global cancer statistics 2018: GLOBOCAN estimates of incidence and mortality worldwide for 36 cancers in 185 countries. CA: A Cancer Journal for Clinicians, 68(6), 394–424. 10.3322/caac.21492 - DOI - PubMed
    1. Bray, F. , Jemal, A. , Grey, N. , Ferlay, J. , & Forman, D. (2012). Global cancer transitions according to the Human Development Index (2008–2030): A population‐based study. The Lancet Oncology, 13(8), 790–801. 10.1016/S1470-2045(12)70211-5 - DOI - PubMed

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