The end of cancer treatment experience for children, adolescents, and their parents: A systematic review of the literature

Abstract

Problem identification: To date, there is limited study of the end of treatment (EOT) transition experiences and needs of children/adolescents with cancer and their parents.

Literature search: A systematic search identified primary research focusing on EOT, describing child, adolescent, and parental perceptions, experiences, and needs during this transition period. Of 170 articles identified, 22 met inclusion criteria.

Data evaluation/synthesis: Studies were appraised for level and quality of evidence. Narrative synthesis was performed to extract themes and integrate the literature. Family members' perceived needs, factors influencing the EOT experience, and consequences of this transition emerged as themes.

Conclusions: Uncertainty and heightened anxiety at EOT highlight the need for increased education and support for family members. Family functioning and distress influence the EOT experience, with variable effects on each family member. There is a call for individualized interventions to promote coping and positive outcomes.

Keywords: end of treatment; parents; pediatric oncology; systematic review; transition.