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Review
. 2020;10(s1):S5-S10.
doi: 10.3233/JPD-202107.

What People with Parkinson's Disease Want

John Andrejack  1 , Soania Mathur  2
Affiliations
Review

What People with Parkinson's Disease Want

John Andrejack et al. J Parkinsons Dis. 2020.

Abstract

Parkinson's disease is an incurable, progressive neurodegenerative disease. This condition is complicated by the varying symptoms in individuals who differ in age of onset, symptoms, progression of disease, response to treatment and prognosis. In this paper, we focus on quality of life achieved through a combination of comprehensive health care, continuous support, and self care. Determining what people with Parkinson's disease want is like assembling multiple puzzles simultaneously. While we surmise that patient centered care, support programs, access to comprehensive health care, and relevant symptom control are pieces of this puzzle, more longitudinal studies- which are observational in nature and correlate the impact of symptoms with patients' reported needs- are necessary.

Keywords: Patient-centered care; fatigue; movement disorders; quality of life; self-care; sleep wake disorders.

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Conflict of interest statement

The authors have no conflict of interest to report.

Figures

Fig. 1.
Fig. 1.
Factors Contributing To QoL.
See this image and copyright information in PMC

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