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Review
. 2020 Sep;26(5):759-767.
doi: 10.1111/hae.14101. Epub 2020 Jul 14.

Haemophilia care in China: Achievements in the past decade

Xueqing Dou  1 , Man-Chiu Poon  2 , Renchi Yang  1
Affiliations
Review

Haemophilia care in China: Achievements in the past decade

Xueqing Dou et al. Haemophilia. 2020 Sep.

Abstract

There is a large population of people with haemophilia in China. However, the development of haemophilia care in China lagged far behind developed countries and was unbalanced across different regions. With the establishment of the Hemophilia Treatment Center Collaborative Network of China (HTCCNC) in 2004 and its collaboration with the Chinese government, the World Federation of Haemophilia (WFH), non-profit foundations, industries, and experts from other countries, haemophilia care in China have made considerable strides in building capacity. The HTCCNC helped develop clinics throughout the country, promote multidisciplinary care, promote prophylaxis (albeit low-dose), advance clinical evaluation and treatment, and research. With many collaborative efforts in the past decade, haemophilia care in China has entered a new stage of development. In this review, we summarize these major achievements and efforts within the last decade.

Keywords: China; World Federation of Haemophilia; collaborative network; government policy; haemophilia care; industry.

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References

REFERENCES

    1. Ozelo MC, Matta MA, Yang R. Meeting the challenges of haemophilia care and patient support in China and Brazil. Haemophilia. 2012;18(Suppl 5):33-38.
    1. Poon MC, Luke KH. Haemophilia care in China: achievements of a decade of World Federation of Hemophilia treatment centre twinning activities. Haemophilia. 2008;14(5):879-888.
    1. Wu R, Luke KH, Poon MC, et al. Low dose secondary prophylaxis reduces joint bleeding in severe and moderate haemophilic children: a pilot study in China. Haemophilia. 2011;17(1):70-74.
    1. Tang L, Wu R, Sun J, et al. Short-term low-dose secondary prophylaxis for severe/moderate haemophilia A children is beneficial to reduce bleed and improve daily activity, but there are obstacle in its execution: a multi-centre pilot study in China. Haemophilia. 2013;19(1):27-34.
    1. Wu RH, Wu XY, Zhang NN, et al. Long-term low-dose secondary prophylaxis for severe and moderate hemophilia children with arthropathy in China: a single-center observation study. Zhonghua Xue Ye Xue Za Zhi. 2013;34(7):632-634.

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