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. 2021 Jan 15;28(1):184-189.
doi: 10.1093/jamia/ocaa188.

Ethics and informatics in the age of COVID-19: challenges and recommendations for public health organization and public policy

Vignesh Subbian  1   2 , Anthony Solomonides  3 , Melissa Clarkson  4 , Vasiliki Nataly Rahimzadeh  5 , Carolyn Petersen  6 , Richard Schreiber  7 , Paul R DeMuro  8 , Prerna Dua  9 , Kenneth W Goodman  10 , Bonnie Kaplan  11 , Ross Koppel  12   13 , Christoph U Lehmann  14 , Eric Pan  15 , Yalini Senathirajah  16
Affiliations

Ethics and informatics in the age of COVID-19: challenges and recommendations for public health organization and public policy

Vignesh Subbian et al. J Am Med Inform Assoc. .

Abstract

The COVID-19 pandemic response in the United States has exposed significant gaps in information systems and processes that prevent timely clinical and public health decision-making. Specifically, the use of informatics to mitigate the spread of SARS-CoV-2, support COVID-19 care delivery, and accelerate knowledge discovery bring to the forefront issues of privacy, surveillance, limits of state powers, and interoperability between public health and clinical information systems. Using a consensus-building process, we critically analyze informatics-related ethical issues in light of the pandemic across 3 themes: (1) public health reporting and data sharing, (2) contact tracing and tracking, and (3) clinical scoring tools for critical care. We provide context and rationale for ethical considerations and recommendations that are actionable during the pandemic and conclude with recommendations calling for longer-term, broader change (beyond the pandemic) for public health organization and policy reform.

Keywords: COVID-19; contact tracing; ethics; privacy; public health surveillance.

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References

    1. Revised U.S. surveillance case definition for severe acute respiratory syndrome (SARS) and update on SARS cases–United States and worldwide. MMWR Morb Mortal Wkly Rep 2003; 52: 1202–6. - PubMed
    1. Cheng VCC, To KKW, Tse H, et al.Two years after pandemic influenza A/2009/H1N1: What have we learned? Clin Microbiol Rev 2012; 25 (2): 223–63. - PMC - PubMed
    1. Harris S, Miller G, Dawsey J, et al. U.S. intelligence reports from January and February warned about a likely pandemic. Washington Post. 2020. https://www.washingtonpost.com/national-security/us-intelligence-reports... Accessed May 10, 2020
    1. Cohen IG, Mello MM.. HIPAA and protecting health information in the 21st Century. JAMA-J Am Med Assoc 2018; 320 (3): 231. - PubMed
    1. Trust Framework and Code of Conduct-CARIN Alliance. https://www.carinalliance.com/our-work/trust-framework-and-code-of-conduct/ Accessed June 5, 2020

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