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Review
. 2020 Oct;34(5):101567.
doi: 10.1016/j.berh.2020.101567. Epub 2020 Aug 13.

What do people need?

Neil Betteridge  1 , Connie Camilleri  2 , Linda Stoyanoff  3 , Deborah Kopansky-Giles  4 , Josef de Guzman  5 , Souzi Makri  6 , Lillian Mwaniki  7
Affiliations
Review

What do people need?

Neil Betteridge et al. Best Pract Res Clin Rheumatol. 2020 Oct.

Abstract

The key question addressed in this Chapter is "What do people need?", with "people" here meaning those who live with a rheumatic or musculoskeletal disease. The word "patient" is avoided at this point as not all of the problems or solutions identified are medical in nature. Many are personal, societal and/or environmental. The lead authors are all people who not only live with a rheumatic or musculoskeletal disease, but who are experienced "patient representatives". Therefore, their insights here stem from a combination of personal and collective experiences and views. Although from different continents, the authors identify a range of common barriers to social participation and optimum management of these conditions, such as late diagnosis, stigma and access to care. However, several solutions are common across these regions too, such as the need for supported self-management and greater public awareness of the impact of these diseases.

Keywords: Access; Early diagnosis; Patient empowerment; Patient involvement; RMDs (rheumatic and musculoskeletal diseases); Self-management; Social inclusion; Stigma.

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References

    1. GBD 2017 DALYs and HALE Collaborators Global, regional and national disability-adjusted life-years DALYs) for 359 diseases and injuries and healthy life expectancy (HALE) for 195 countries and territories, 1990-2017: a systematic analysis for the Global Burden of Disease Study 2017. Lancet. 2018;392:1959–2922. - PMC - PubMed
    1. Briggs A.M., Cross M.J., Hoy D.G., et al. Musculoskeletal health conditions represent a global threat to healthy aging: a report for the 2015 World Health Organization world report on ageing and health. Gerontol. 2016;56(suppl_2):S243–S255. - PubMed
    1. Storheim K., Zwart J.A. Musculoskeletal disorders and the global burden of disease study. Annals of Rheumatology. 2014;73(6):949–950. - PubMed
    1. Allen K.D. Musculoskeletal health addressing the leading causes of disability. N C Med J. 2017;78(5):306–309. - PubMed
    1. Bair M.J., Matthias M.S., Nyland K.A., et al. Barriers and facilitators to chronic pain self-management: a qualitative study of primary care patients with comorbid musculoskeletal pain and depression. Pain Med. 2009;10(7):1280–1290. - PMC - PubMed