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. 2020 Aug 20;8(3):282.
doi: 10.3390/healthcare8030282.

Palliative and End-of-Life Care Conversations with Older People with Chronic Obstructive Pulmonary Disease in Croatia-A Pilot Study

Petra Čičak  1   2 , Sanja Thompson  3 , Sanja Popović-Grle  4 , Vladimir Fijačko  1   2 , Jasmina Lukinac  5 , Ana Marija Lukinac  1   6
Affiliations

Palliative and End-of-Life Care Conversations with Older People with Chronic Obstructive Pulmonary Disease in Croatia-A Pilot Study

Petra Čičak et al. Healthcare (Basel). .

Abstract

Despite the progressive nature of chronic obstructive pulmonary disease (COPD), its association of high morbidity and mortality with severe COPD, and the view that discussions between patients and clinicians about palliative care plans should be grounded in patients' preferences, many older patients do not receive timely end-of-life care (EOLC) discussions with healthcare professionals (HPs), potentially risking inadequate care at the advanced stages of the disease. The aim of this pilot study was to evaluate EOLC discussions and resuscitation issues as a representative and illustrative part within EOLC in older patients with COPD in the University Hospital Center Osijek, Slavonia (Eastern Region), Croatia, as such data have not yet been explored. The study was designed as cross-sectional research. Two groups of participants, namely, patients at least 65 years old with COPD and healthcare professionals, were interviewed anonymously. In total, 83 participants (22 HPs and 61 patients with COPD) were included in the study. According to the results, 77% of patients reported that they had not had EOLC discussions with HPs, 64% expressed the opinion that they would like such conversations, and the best timing for such discussion would be during frequent hospital admissions. Furthermore, 77% of HPs thought that EOLC communication is important, but only 14% actually discussed such issues with their patients because most of them felt uncomfortable starting such a topic. The majority of older patients with COPD did not discuss advanced care planning with their HPs, even though the majority of them would like to have such a discussion. EOLC between HPs and older patients with COPD should be encouraged in line with patients' wishes, with the aim to improve their quality of care by anticipating patients' likely future needs in a timely manner and thereby providing proactive support in accordance with patients' preferences.

Keywords: COPD; communication; end of life care; palliative care.

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Conflict of interest statement

The authors declare no conflict of interest.

Figures

Figure 1
Figure 1
The questionnaire for patients. COPD: Chronic obstructive pulmonary disease.
Figure 2
Figure 2
The questionnaire for doctors and nurses. FEV: Forced expiratory volume, ITU: Intubation, MRC: Medical Research Council, NIV: Non-Invasive Ventilation, SpR: Specialist registrar.
Figure 3
Figure 3
End-of-life care (EOLC) discussion that took place and patients’ preferences about such discussion.
Figure 4
Figure 4
Patients’ preferences regarding the timing of the EOLC discussion.
See this image and copyright information in PMC

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