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. 2020 Sep 1;10(9):e036872.
doi: 10.1136/bmjopen-2020-036872.

Identifying integrated health services and social care research priorities in kidney disease in Wales: research prioritisation exercise

Leah Mc Laughlin  1 , Susan Spence  2 , Jane Noyes  3
Affiliations

Identifying integrated health services and social care research priorities in kidney disease in Wales: research prioritisation exercise

Leah Mc Laughlin et al. BMJ Open. .

Abstract

Objectives: To identify the shared research priorities of patients, caregivers and multidisciplinary renal health and social care professionals across Wales for integrated renal health and social care in Wales.

Design: Research priority setting exercise adapted from the James Lind Alliance national priority setting partnership framework in UK healthcare.

Setting: Two workshops: one in North Wales with patients, caregivers and multidisciplinary renal health and social care professionals and one in South Wales with the Welsh Renal Clinical Network (commissioners of renal services in Wales). Additional input provided from stakeholders via email correspondence and face to face communications.

Participants: Academics n=14, patients n=16, family/carers n=6, multidisciplinary renal healthcare professionals n=40, local authority councils n=3, renal charities n=6 wider third sector organisations n=8, renal industries n=4, Welsh government social care n=3, renal service commissioners n=8.

Results: 38 research priority questions grouped into 10 themes were agreed. The themes included: (1) integrating health and social care, (2) education, (3) acute kidney injury, (4) chronic kidney disease and cardiovascular disease, (5) transplantation, (6) dialysis, (7) personalised medicines, (8) cross-cutting priorities, (9) specific social contexts and (10) transitional services and children. Research questions were broad and covered a range of health and social care topics. Patient and professional perspectives broadly overlapped. Research priority setting activities revealed gaps in knowledge in overall service provision and potential areas for service improvement.

Conclusions: Mapping priorities in health services and social care highlighted the research needed to support renal health services delivery and commissioning in Wales.

Keywords: health services administration & management; nephrology; social medicine.

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Conflict of interest statement

Competing interests: None declared.

Figures

Figure 1
Figure 1
Welsh Renal Clinical Network roles and responsibilities. NHS, National Health Service.
Figure 2
Figure 2
List of NHS health boards. NHS, National Health Service.
Figure 3
Figure 3
Wales population and deprivation mapping.
Figure 4
Figure 4
Deprivation map (overall and health) and access to services map zoned by health board.
See this image and copyright information in PMC

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References

    1. Network WRC Renal services in Wales 2016 – 2020 delivery plan, 2016. Available: http://www.wales.nhs.uk/sites3/Documents/773/RenalDiseaseQualityDelivery... [Accessed 11 Oct 2019].
    1. Registry R. Audit Portal - UK Renal Registry. Available: https://www.renalreg.org/datasets/audit-portal/ [Accessed 11 Oct 2019].
    1. Kidney Research UK As kidney failure rates grow in Wales, Kidney Research UK challenges lack of awareness on World Kidney Day - Kidney Research UK. Available: https://kidneyresearchuk.org/2017/03/09/as-kidney-failure-rates-grow-in-... [Accessed 11 Oct 2019].
    1. Abdel-Kader K, Unruh ML, Weisbord SD. Symptom burden, depression, and quality of life in chronic and end-stage kidney disease. Clin J Am Soc Nephrol 2009;4:1057–64. 10.2215/CJN.00430109 - DOI - PMC - PubMed
    1. Nguyen NTQ, Cockwell P, Maxwell AP, et al. . Chronic kidney disease, health-related quality of life and their associated economic burden among a nationally representative sample of community dwelling adults in England. PLoS One 2018;13:e0207960. 10.1371/journal.pone.0207960 - DOI - PMC - PubMed

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