Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
. 2020 Sep 15;20(1):346.
doi: 10.1186/s12883-020-01926-7.

Rasch analysis of the living with chronic illness scale in Parkinson's disease

Leire Ambrosio  1 , Carmen Rodriguez-Blazquez  2 , Alba Ayala  3 , Maria João Forjaz  3
Affiliations

Rasch analysis of the living with chronic illness scale in Parkinson's disease

Leire Ambrosio et al. BMC Neurol. .

Abstract

Background: Neurologists play an essential role in facilitating the patient's process of living with Parkinson's disease (PD). The Living with Chronic Illness Scale-PD (LW-CI-PD) is a unique available clinical tool that evaluates how the patient is living with PD. The objective of the study was to analyse the LW-CI-PD properties according to the Rasch model.

Methods: An open, international, cross-sectional study was carried out in 324 patients with Parkinson's disease from four Latin American countries and Spain. Psychometric properties of the LW-CI-PD were tested using Rasch analysis: fit to the Rasch model, item local independency, unidimensionality, reliability, and differential item functioning by age and gender.

Results: Original LW-CI-PD do not fit Rasch model. Modifications emerged included simplifying the response scale and deleting misfit items, the dimensions Acceptance, Coping and Integration showed a satisfactory fit to the Rasch model, with reliability indices greater than 0.70. The dimensions Self-management and Adjustment to the disease did not reach fit to the Rasch model.

Conclusion: Suggestions for improving the LW-CI-PD include a multidimensional and shorter scale with 12 items grouped in three subscales with a simpler response scheme. The final LW-CI-PD Scale version is a reliable scale, with good internal construct validity, that provides Rasch transformed results on linear metric scale.

Keywords: LW-CI-PD; Living with; Parkinson’s disease; Psychometrics; Rasch analysis.

PubMed Disclaimer

Conflict of interest statement

The authors declare that they have no competing interests.

Figures

Fig. 1
Fig. 1
Person-item distribution for dimensions Acceptance (top), Coping (middle) and Integration (bottom) dimensions, after model modifications
See this image and copyright information in PMC

References

    1. European Parkinson’s Disease Association (2017) About Parkinson’s [accessed 9 February 2020] EPDA. Available in: http://www.epda.eu.com/about-parkinson-s/what-is-parkinson-s/.
    1. Navarta-Sánchez MV, Riverol M, Ursúa ME, Ambrosio L, Senosiain JM, Portillo MC. Psychoeducational intervention for people with Parkinson’s disease and family/carers: preliminary results at baseline time. Enf Neurol. 2019;49:16–22. doi: 10.1111/j.1440-1630.2006.00610.x. - DOI
    1. Ambrosio L, Portillo MC, Rodríguez-Blázquez C, Rojo JM, Martinez-Martin P. Influencing factors when living with Parkinson’s disease: a cross-sectional study. J Clin Nurs. 2019;28:3168–3176. doi: 10.1111/jocn.14868. - DOI - PubMed
    1. Hurt CS, Burn DJ, Hindle J, Samuel M, Wilson K, Brown RG. Thinking positively about chronic illness: an exploration of optimism, illness perceptions and well-being in patients with Parkinson’s disease. Br J Health Psychol. 2014;19:363–379. doi: 10.1111/bjhp.12043. - DOI - PubMed
    1. Haahr A, Kirkevold M, Hall EOC, Ostergaard K. Living with advanced Parkinson’s disease: a constant struggle with unpredictability. J Adv Nurs. 2011;67:408–417. doi: 10.1111/j.1365-2648.2010.05459.x. - DOI - PubMed