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. 2021 Mar;21(3):950-957.
doi: 10.1111/ajt.16315. Epub 2020 Oct 9.

Findings and recommendations from the organ transplant caregiver initiative: Moving clinical care and research forward

Michelle T Jesse  1   2   3   4 , Beverly Hansen  5 , Heather Bruschwein  6 , Gloria Chen  7 , Camilla Nonterah  8   9 , John Devin Peipert  10 , Mary Amanda Dew  11 , Charlie Thomas  12 , Adilia D Ortega  13 , Wendy Balliet  14 , Keren Ladin  15 , Stacee Lerret  16 , Alexander Yaldo  17 , Tiffany Coco  18 , Jorge Mallea  19
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Free article

Findings and recommendations from the organ transplant caregiver initiative: Moving clinical care and research forward

Michelle T Jesse et al. Am J Transplant. 2021 Mar.
Free article

Abstract

Lay-caregivers are essential to the continuum of care in adult organ transplantation. However, we have a limited understanding of the experiences, exigencies, and outcomes associated with lay-caregiving for organ transplant patients. While much discussion and debate has focused on caregiver requirements in relation to transplant candidate selection, little focus has been given to understanding the needs of caregivers themselves. In response to this, the Organ Transplant Caregiver Initiative was created, and a meeting was held during October 6-7, 2019. Transplant healthcare professionals, researchers, and lay-caregivers discussed the experiences, educational needs, existing research, and research recommendations to improve the experience of lay-caregivers for adult organ transplant patients. In this report, we summarize the Organ Transplant Caregiver Initiative and meeting findings, providing a preliminary action plan to improve education, research, and advocacy for organ transplant caregivers.

Keywords: editorial/personal viewpoint; education; ethics and public policy; mental health; patient education; social sciences.

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References

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