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Review
. 2020 Jul-Sep;14(3):209-215.
doi: 10.1590/1980-57642020dn14-030002.

Challenges in public perception: highlights from the United Kingdom-Brazil Dementia Workshop

Lucas Nogueira de Carvalho Pelegrini  1 , Abigail Hall  2 , Emma Hooper  3 , Déborah Oliveira  4 , Flora Guerra  5 , Francine Golghetto Casemiro  1 , Janine Bonfadini  6 , Keir Yong  7 , Natalie Pereira  8 , Raquel Costa  9 , Maira Tonidandel Barbosa  10 , Eneida Mioshi  11
Affiliations
Review

Challenges in public perception: highlights from the United Kingdom-Brazil Dementia Workshop

Lucas Nogueira de Carvalho Pelegrini et al. Dement Neuropsychol. 2020 Jul-Sep.

Abstract
in English, Portuguese

In July 2019, Belo Horizonte hosted an international workshop for 27 junior researchers, whose participants were from Brazil and the United Kingdom. This three-day meeting organized by the Universidade Federal de Minas Gerais and the University of East Anglia addressed challenges in cognitive impairment and dementia, with particular interest in public perceptions, diagnosis and care management. The purpose of this report is to highlight the outcomes of the above-mentioned workshop regarding the topic of public perceptions (part I). Discussions focused on differences and similarities between countries, as well as on identifying main issues that required collaborative and creative solutions. After these group discussions, four core themes emerged: I) cognitive impairment; II) dementia - beyond Alzheimer's disease; III) prevention; and IV) stigma. National and international initiatives to deal with public misperceptions about cognitive impairment and dementia were discussed.

Em julho de 2019, Belo Horizonte sediou um workshop internacional cujos participantes foram 27 pesquisadores do Brasil e do Reino Unido. Essa reunião de três dias, organizada pela Universidade Federal de Minas Gerais e pela Universidade de East Anglia, abordou os desafios no comprometimento cognitivo e na demência, com interesse particular nas percepções do público, diagnóstico e gerenciamento de cuidados. O objetivo deste relatório foi destacar os resultados do workshop sobre o tópico percepções do público (parte I). O enfoque das discussões foi nas semelhanças e diferenças entre os países, bem como na identificação dos principais problemas que necessitam soluções criativas e colaborativas. Após essas discussões em grupo, quatro temas principais foram elencados: I) comprometimento cognitivo; II) demência - além da doença de Alzheimer; III) prevenção; e IV) estigma. Foram discutidas iniciativas nacionais e internacionais para lidar com as percepções alteradas do público sobre comprometimento cognitivo e demência.

Keywords: Alzheimer’s disease; aged; cognitive impairment; dementia; social perception; social stigma.

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Conflict of interest statement

Disclosure: The authors report no conflicts of interest.

References

    1. World Health Organization . Global action plan on the public health response to dementia 2017-2025. Geneva: World Health Organization; 2017. [March 4th, 2020]. 47 p. Available at: http://www.who.int/mental_health/neurology/dementia/action_plan_2017_202...
    1. World Health Organization . Towards a dementia plan: a WHO guide. World Health Organization; 2018. [March 4th, 2020]. Available at: http://www.who.int/iris/handle/10665/272642.
    1. Engedal K, Laks J. Towards a Brazilian dementia plan? Lessons to be learned from Europe. Dement Neuropsychol. 2016;10(2):74–78. doi: 10.1590/S1980-5764-2016DN1002002. - DOI - PMC - PubMed
    1. Cations M, Radisic G, Crotty M, Laver KE. What does the general public understand about prevention and treatment of dementia? A systematic review of population-based surveys. Werner P, editor. PLoS One. 2018;13(4):1–18. doi: 10.1371/journal.pone.0196085. - DOI - PMC - PubMed
    1. Mukadam N, Livingston G. Reducing the stigma associated with dementia: approaches and goals. Aging Health. 2012;8(4):377–386. doi: 10.2217/ahe.12.42. - DOI