Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
. 2020 Dec;76(12):3440-3447.
doi: 10.1111/jan.14552. Epub 2020 Sep 29.

Establishing fidelity for the creating opportunities for personal empowerment: Symptom and technology management resources (COPE-STAR) intervention

Regena Spratling  1 , Melissa S Faulkner  2 , Rebecca Chambers  3 , Patricia Lawrence  3 , Iris Feinberg  4 , Matthew J Hayat  5
Affiliations

Establishing fidelity for the creating opportunities for personal empowerment: Symptom and technology management resources (COPE-STAR) intervention

Regena Spratling et al. J Adv Nurs. 2020 Dec.

Abstract
in English, Chinese

Aim: To establish intervention fidelity for the Creating Opportunities for Personal Empowerment: Symptom and Technology Management Resources web-based intervention to assist caregivers of children aged 1-5 years in managing their child's symptoms and medical technology of tracheostomies and feeding tubes at home.

Design: Descriptive study of the strategies used to establish intervention fidelity, specifically using expert and caregiver reviewers.

Methods: To establish fidelity of the intervention, experts and caregivers were asked to evaluate the usefulness, ease of use, and acceptability of the intervention and provide any suggestions for the modules. Caregivers provided caregiver and child characteristics and were administered a health literacy measure, the Newest Vital Sign. Intervention fidelity was established from April 2019-July 2019.

Results/findings: Expert and caregiver reviewers (N = 13) all agreed or strongly agreed that the intervention was useful, easy to use, and acceptable. In addition, caregiver reviewers provided care to children who required multiple technologies and a variety of care needs at home and confirmed adequate health literacy (N = 5).

Conclusion: The use of expert and caregiver reviewers was very beneficial in establishing intervention fidelity. Caregivers are experts in the care of their child and provide valuable feedback based on their daily experiences at home. Experts provided evidence-based feedback.

Impact: This nursing intervention addresses caregivers of children who require medical technology by targeting caregiver management for common symptoms, related technologies, and resources for the child and caregiver in the home setting. Intervention fidelity was established and expert and caregiver reviewers confirmed the usefulness, ease of use, and acceptability of the intervention. This study is essential to nursing, other healthcare providers, and healthcare systems in planning and implementing programmes and services for children and their caregivers and for nurse researchers establishing intervention fidelity.

Trial registration: This study is not designated as a clinical trial per NIH/NINR study and grant proposal guidelines.

目的: 实施干预,给人权创造机会:症状及技术管理资源干预以网络为基础,旨在帮助1-5岁儿童的护理者掌握儿童症状,并在家中利用气管造口和饲管等医疗技术。 设计: 开展描述性研究,制定干预策略,选择专家和护理评审员。 方法: 为确定干预措施的可信度,专家和护理者需要评估干预措施的有用性、易用性和可接受性,并应针对相关模块提出建议。护理者提供其自身和儿童的个性特征,开展健康素养测试,并将相关测试结果视为新的生命体征。2019年4月至2019年7月,成功确定干预措施的可信度。 结果/调查结果: 专家和护理评审员(N = 13)同意或强烈赞同干预措施有效、易用且可接受。此外,护理评审员为存在多种技术和家庭护理需求的儿童提供护理服务,并应确认其掌握充分的健康知识(N = 5)。 结论: 聘用专家和护理评审员,可确保干预措施可信。护理者是照顾孩子的专家,可以根据日常经验提供有价值的反馈。专家提供的反馈都有相关证据支持。 影响: 这种护理干预适用于有医疗技术需求的儿童的护理者,主要针对家庭环境中儿童和护理者的常见症状、相关技术和资源。干预措施可信,并且专家和护理评审员已经确认干预措施的有用性、易用性和可接受性。这项研究对于护理、其他医疗提供者和医疗保健系统较为重要,主要涉及规划和实施适用于儿童及其护理者的方案和服务,以及为护士研究者确定干预措施的可信度。 试验注册: 根据NIH/NINR研究和拨款建议指南,本研究不属于临床试验。.

Keywords: caregivers; children; complex chronic illness; feeding tube; intervention fidelity; medical technology; nursing; technological dependence; tracheostomy.

PubMed Disclaimer

Conflict of interest statement

CONFLICT OF INTEREST

The authors declare no conflicts of interest.

Similar articles

See all similar articles

Cited by

References

    1. Bakas T, Farran C, Austin J, Given B, Johnson E, & Williams L. (2009). Content validity and satisfaction with a stroke caregiver intervention program. Journal of Nursing Scholarship, 41(4), 368–375. 10.1111/j.1547-5069.2009.01282.x - DOI - PMC - PubMed
    1. Blanton S, Clark P, & Dunbar SB (2017). Feasibility of a carepartner integrated telehealth rehabilitation program for persons with stroke: A case series San Antonio, TexasAmerican Physical Therapy Association Combined Sections Meeting.
    1. Carver CS, & Scheier MF (1982). Control theory: A useful conceptual framework for personality-social, clinical and health psychology. Psychological Bulletin, 92(1), 111–135. 10.1037/0033-2909.92.1.111 - DOI - PubMed
    1. Concannon TW, Fuster M, Saunders T, Patel K, Wong JB, Leslie LK, & Lau J. (2014). A systematic review of stakeholder engagement in comparative effectiveness and patient-centered outcomes research. Journal of General Internal Medicine, 29(12), 1692–1701. 10.1007/s11606-014-2878-x - DOI - PMC - PubMed
    1. Coulter I, Elfenbaum P, Jain S, & Jonas W. (2016). SEaRCH™ expert panel process: Streamlining the link between evidence and practice. BMC Research Notes, 9(1), 16 10.1186/s13104-015-1802-8 - DOI - PMC - PubMed