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. 2021 Jul;20(5):1711-1722.
doi: 10.1177/1471301220965552. Epub 2020 Oct 8.

A survey of the experience of living with dementia in a dementia-friendly community

Nicole Darlington  1 , Antony Arthur, Michael Woodward  2 , Stefanie Buckner  3 , Anne Killett  2 , Louise Lafortune  3 , Elspeth Mathie  1 , Andrea Mayrhofer  1 , John Thurman  2 , Claire Goodman  1
Affiliations

A survey of the experience of living with dementia in a dementia-friendly community

Nicole Darlington et al. Dementia (London). 2021 Jul.

Abstract

Dementia-friendly communities (DFCs) are one way in which people living with dementia can be supported to be active, engaged and valued citizens. Quantitative evaluations of the experiences of those with dementia living within these communities are scarce. This article reports findings from a survey of people living with dementia on their experience of living in a DFC. Two-hundred and forty people living with dementia completed a cross-sectional survey in six DFCs across England. Around half of respondents reported they were aware they were living in a DFC. Being aware of living in a DFC was associated with taking part in leisure activities (p = 0.042), community centre attendance (p = 0.009), being involved in organised activities or groups (p < 0.001), feeling understood (p = 0.008), and feeling valued for their own contributions to the community (p = 0.002). This study illustrates the contribution that surveys can make in facilitating the expression of views and experiences of people living with dementia. Awareness of living within a DFC is associated with greater involvement in, and belonging to, the wider community.

Keywords: England; awareness; dementia; dementia friendly community; questionnaire; survey.

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Conflict of interest statement

Declaration of Conflicting Interests: The authors declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.

References

    1. Allen R., Hignett S., Cook S., Jais C. (2017). Giving people with dementia a voice in research. Loughborough, UK: Loughborough University.
    1. All-Party Parliamentary Group on Dementia. (2013). Dementia does not discriminate: The experiences of black, Asian and minority ethnic communities. Alzheimer's Society.
    1. Alzheimer’s Society . (2016). Factsheet 439LP: Driving with dementia . Retrieved from: https://www.alzheimers.org.uk/sites/default/files/201810/439LP%20Driving...
    1. Alzheimer’s Society . (2020). What is a dementia-friendly community? Retrieved from: https://www.alzheimers.org.uk/get-involved/dementia-friendly-communities...
    1. Brooks J., Savitch N., Gridley K. (2017). Removing the'gag': Involving people with dementia in research as advisers and participants. Social Research Practice, 3-14.