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. 2020;30(7):481-495.
doi: 10.1080/10508422.2019.1692663. Epub 2019 Nov 27.

"They know what they are getting into:" Researchers confront the benefits and challenges of online recruitment for HIV research

Elise Bragard  1 , Celia B Fisher  2 , Brenda L Curtis  3
Affiliations

"They know what they are getting into:" Researchers confront the benefits and challenges of online recruitment for HIV research

Elise Bragard et al. Ethics Behav. 2020.

Abstract

Online research has become a critical recruitment modality for understanding and reducing health disparities among hidden populations most at risk for HIV infection. There is a lack of consensus and guidelines for the responsible conduct of online recruitment for HIV risk populations. Using semi-structured phone interviews, this study drew on the experiences of principal investigators (PIs) engaged in online HIV research to illuminate scientific and ethical benefits and challenges of social media recruitment. Using Thematic Analysis five major themes emerged: sampling advantages and disadvantages; challenges of data integrity; control of privacy protections; researcher competence and responsibility; and resources.

Keywords: HIV; ethics Internet research; online recruitment; privacy; social media.

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References

    1. Anderson M, Perrin A, Jiang J, & Kumar M (2019). 10% of Americans don’t use the Internet. Who are they? Pew Research Center; Retrieved from https://www.pewresearch.org/fact-tank/2019/04/22/some-americans-dont-use...
    1. Beddows E (2008). The methodological issues associated with Internet-based research. International Journal of Emerging Technologies & Society, 6(2), 124–139.
    1. Bender JL, Cyr AB, Arbuckle L, & Ferris LE (2017). Ethics and privacy implications of using the Internet and social media to recruit participants for health research: A privacy-by-design framework for online recruitment. Journal of Medical Internet Research, 19(4), e104 10.2196/jmir.7029 - DOI - PMC - PubMed
    1. Beymer MR, Holloway IW, & Grov C (2018). Comparing self-reported demographic and sexual behavioral factors among men who have sex with men recruited through Mechanical Turk, Qualtrics, and a HIV/STI clinic-based sample: Implications for researchers and providers. Archives of Sexual Behavior, 47(1), 133–142. 10.1007/s10508-016-0932-y - DOI - PMC - PubMed
    1. Bowen A, Williams M, & Horvath K (2004). Using the Internet to recruit rural MSM for HIV risk assessment: Sampling issues. AIDS and Behavior, 8(3), 311–319. 10.1023/B:AIBE.0000044078.43476.1f - DOI - PMC - PubMed

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