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. 2022 May;27(3):296-325.
doi: 10.1111/nicc.12564. Epub 2020 Oct 21.

Systematic review of family engagement interventions in neonatal, paediatric, and adult ICUs

Affiliations

Systematic review of family engagement interventions in neonatal, paediatric, and adult ICUs

Natalie S McAndrew et al. Nurs Crit Care. 2022 May.

Abstract

Aims and objectives: The purpose of this systematic review was to evaluate interventions that have been used to engage families in direct care activities (active family engagement) in adult, paediatric, and neonatal intensive care unit (ICU) settings.

Background: Family engagement is universally advocated across ICU populations and practice settings; however, appraisal of the active family engagement intervention literature remains limited.

Search strategy: Ovid Medline, PsycArticles & PsycInfo, Scopus, and CINAHL were searched for family interventions that involved direct care of the patient to enhance the psychological, physical, or emotional well-being of the patient or family in neonatal, paediatric, or adult ICUs.

Inclusion/exclusion criteria: Studies were included if an active family engagement intervention was evaluated. Studies were excluded if they were not published in English or reported non-interventional research.

Results: A total of 6210 abstracts were screened and 19 studies were included. Most studies were of low to moderate quality and were conducted in neonatal ICUs within the United States. Intervention dosage and frequency varied widely across studies. The interventions focused on developmental care (neonatal ICU) and involved families in basic patient care. Family member outcomes measured included satisfaction, stress, family-centred care, confidence, anxiety, and depression. Most studies found improvements in one or more outcomes.

Conclusions: There is a paucity of literature about active family engagement interventions, especially in adult and paediatric populations. The optimal dosage and frequency of family engagement interventions remains unknown. Our systematic review found that data are limited on the relationship between family engagement and patient outcomes, and provides a timely appraisal to guide future research.

Relevance to clinical practice: Further research on the efficacy of family engagement interventions is warranted. The translation of active family engagement interventions into clinical practice should also be supported.

Keywords: family care in critical care; family engagement; family involvement; family-centred care; intensive care; role of family in ICU.

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Figures

FIGURE 1
FIGURE 1
Ovid Medline search strategy
FIGURE 2
FIGURE 2
Preferred reporting items for systematic reviews and meta-analyses (PRISMA) diagram

References

    1. Carman KL, Dardess P, Maurer M, et al. Patient and family engagement: a framework for understanding the elements and developing interventions and policies. Health Aff. 2013;32:223–231. - PubMed
    1. Brown SM, Rozenblum R, Aboumatar H, et al. Defining patient and family engagement in the intensive care unit. Am J Respir Crit Care Med. 2015;191:358–360. - PubMed
    1. Olding M, McMillan SE, Reeves S, Schmitt MH, Puntillo K, Kitto S. Patient and family involvement in adult critical and intensive care settings: a scoping review. Health Expect. 2016;19:1183–1202. - PMC - PubMed
    1. Davidson JE, Aslakson R, Long AC, et al. Guidelines for family-centered care in the neonatal, pediatric, and adult ICU. Crit Care Med. 2017;45:103–128. - PubMed
    1. Kleinpell R, Zimmerman J, Vermoch KL, et al. Promoting family engagement in the ICU: experience from a national collaborative of 63 ICUs. Crit Care Med. 2019;47:1692–1698. - PubMed

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