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. 2020 Jan 13;11(6):448-453.
doi: 10.1136/flgastro-2019-101303. eCollection 2020 Oct.

Measuring patient and carer experience related to paediatric gastrointestinal endoscopy: multicentre questionnaire study

Jessica Wai Yan Wan  1 , Elizabeth Griffiths  1 , Rosalind Rabone  1 , Zahmeena Zuhair  1 , Zuzana Londt  2 , David Rawat  2 , Janis Maginnis  3 , Amal Elzubair  3 , Anna Pigott  3 , Mike Thomson  1 , Priya Narula  1
Affiliations

Measuring patient and carer experience related to paediatric gastrointestinal endoscopy: multicentre questionnaire study

Jessica Wai Yan Wan et al. Frontline Gastroenterol. .

Abstract

Background: The Paediatric Endoscopy Global Rating Scale (P-GRS) is a quality improvement tool used in the UK. An important aspect of this includes regular surveys on the patient and/or carer's endoscopy experience. The aim of our study was to design and implement a patient/carer experience questionnaire.

Methods: This questionnaire was designed to obtain feedback on patient and/or carer satisfaction with their endoscopy experience. Question selection was based on relevant measures in the endoscopy Global Rating Scale, with input from clinical governance, Patient Advice and Liaison Service and a hospital youth forum. This was distributed to patients and/or carers in three UK paediatric endoscopy services during six surveys between 2013 and 2018. Data were then collated and analysed on Microsoft Excel for Office 365 MSO (16.0.11901.20070).

Results: Overall, 830 endoscopic procedures occurred during the six survey periods. 270 questionnaires were returned. Feedback from the questionnaires were mostly positive (overall satisfaction rated 'excellent' or 'good' was seen in 87% of responses) but also identified areas of improvement, such as in managing postprocedure pain and having a separate space for adolescents for preprocedure discussions. Improvements in satisfaction scores were noted in one unit over time, particularly in preprocedure preparation (from 86% to 100%), and overall satisfaction with endoscopy experience (81%-100%).

Conclusion: All three paediatric endoscopy services found this questionnaire useful in identifying areas needing improvement and in demonstrating compliance with measures within the P-GRS quality of patient experience domain. Further work includes exploring ways to increase response rates, as well as developing age-appropriate and electronic versions.

Keywords: gastrointesinal endoscopy; paediatric gastroenterology.

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Conflict of interest statement

Competing interests: None declared.

Figures

Figure 1
Figure 1
Distribution of age by study.
See this image and copyright information in PMC

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