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. 2020 Nov 6;10(11):e039014.
doi: 10.1136/bmjopen-2020-039014.

Feasibility and acceptability of e-PROMs data capture and feedback among patients receiving haemodialysis in the Symptom monitoring WIth Feedback Trial (SWIFT) pilot: protocol for a qualitative study in Australia

Emily Duncanson  1 , Paul N Bennett  2 , Andrea Viecelli  3 , Kathryn Dansie  1 , William Handke  4 , Allison Tong  5 , Suetonia Palmer  6 , Shilpanjali Jesudason  7   8 , Stephen P McDonald  1   7 , Rachael L Morton  9 ; Symptom monitoring WIth Feedback Trial (SWIFT) Investigators
Affiliations

Feasibility and acceptability of e-PROMs data capture and feedback among patients receiving haemodialysis in the Symptom monitoring WIth Feedback Trial (SWIFT) pilot: protocol for a qualitative study in Australia

Emily Duncanson et al. BMJ Open. .

Abstract

Introduction: People receiving haemodialysis experience a high symptom burden and impaired quality of life. The use of patient-reported outcome measures (PROMs) is increasing in nephrology care, however their acceptability, utility and impacts are not well understood.

Methods and analysis: We describe a protocol for a qualitative study to evaluate the feasibility and acceptability of electronic-PROMs (e-PROMs) data capture and feedback in haemodialysis following the pilot Symptom monitoring WIth Feedback Trial (SWIFT). SWIFT involves linkage of e-PROMs data, including symptoms and health-related quality of life, to the Australia and New Zealand Dialysis and Transplant Registry with feedback to patients' treating nephrologists and nurse unit managers. Focus groups and semistructured interviews will be conducted with nephrologists (n=15), dialysis nurses (n=24) and patients receiving haemodialysis (n=24) from six dialysis units in Australia. Question topics will include the technical and clinical feasibility and acceptability of e-PROMs reporting and feedback (including the barriers and enablers to uptake) and perceived impact on patient care and outcomes. Transcripts will be analysed thematically and guided by Normalisation Process Theory.

Ethics and dissemination: Ethics approval was obtained from the relevant hospital Human Research Ethics Committees (HREC/18/CALHN/481; HREC/MML/54599). The findings from the SWIFT pilot and qualitative evaluation will inform the implementation of the SWIFT main trial, and more broadly, the use of e-PROMs in clinical settings and registries.

Trial registration number: ANZCTRN12618001976279.

Keywords: adult nephrology; chronic renal failure; dialysis; nephrology; qualitative research.

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Conflict of interest statement

Competing interests: None declared.

Figures

Figure 1
Figure 1
Qualitative evaluation study schema. e-PROMs, electronic-patient-reported outcome measures; SWIFT, Symptom monitoring WIth Feedback Trial.
See this image and copyright information in PMC

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