Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
. 2020 Nov 2;6(1):e12082.
doi: 10.1002/trc2.12082. eCollection 2020.

Changes in physical and mental health of Black, Hispanic, and White caregivers and non-caregivers associated with onset of spousal dementia

Affiliations

Changes in physical and mental health of Black, Hispanic, and White caregivers and non-caregivers associated with onset of spousal dementia

Cynthia Chen et al. Alzheimers Dement (N Y). .

Abstract

Introduction: We aim to determine whether racial/ethnic health disparities are a consequence of caregiving for persons with dementia and/or health status before becoming a caregiver.

Methods: Longitudinal data from the Health and Retirement Study (1998-2012) on 7859 Black, Hispanic, and White couples were analyzed for changes in physical and mental health with incident dementia of a spouse.

Results: Blacks and Hispanics, but not Whites, had poorer health before becoming caregivers for a spouse with dementia, than those who did not become caregivers. Spouse's dementia onset was associated with caregiver's higher odds of depressive disorder, with no racial/ethnic variation. Racial disparities in caregiver's health were attributed to health differences before caregiving, not differential health changes due to caregiving.

Discussion: Older Blacks and Hispanics with poor health are at increased risk of caregiving for a spouse with dementia. Protecting the health of persons supporting spouses with dementia requires understanding socioeconomic and cultural factors driving care provision.

Keywords: caregiving; dementia; depression; racial disparities.

PubMed Disclaimer

Conflict of interest statement

The authors declare no conflicts of interest.

Figures

FIGURE 1
FIGURE 1
Prevalence of depressive disorder and poor self‐reported health before (t = –2), at (t = 0), and after (t = 2) onset of spousal dementia by race/ethnicity and caregiving status at t = 0 or t = 2. Note: Prevalence of depressive disorder and poor health by race/ethnicity among couples with incident dementia of a spouse over the study period 1998–2012. Prevalence rates are shown separately and by a solid line for those who become caregivers (cg) and a dashed line for those who do not become caregivers (nocg) after onset of a spouse's dementia
FIGURE 2
FIGURE 2
Predicted probability of onset of depressive disorder by race, dementia, and caregiving. Note: Predictions from multivariate logistic regression with random‐intercept, robust variance estimators (Table 2, model 2), study waves 1998–2012 (n = 47,873 person waves. Adjusted for factors: race/ethnicity, dementia, caregiving, sex, age, education, household wealth, survey year

References

    1. Gaugler J, James B, Johnson T, Marin A, Weuve J. 2019 Alzheimer's disease facts and figures.(Report). Alzheimers Dement. 2019;15(3):321.
    1. Reckrey JM, Morrison RS, Boerner K, et al. Living in the community with dementia: who receives paid care?. J Am Geriatr Soc. 2020;68(1):186‐191. - PMC - PubMed
    1. Zissimopoulos J, Crimmins E, Clair PS. The value of delaying Alzheimer's disease onset. Forum Health Econ Policy. 2015;18(1):25‐39. - PMC - PubMed
    1. Schulz R, Martire LM. Family caregiving of persons with dementia: prevalence, health effects, and support strategies. Am J Geriatr Psychiatry. 2004;12(3):240‐249. - PubMed
    1. Kiecolt‐Glaser JK, Dura JR, Speicher CE, Trask OJ, Glaser R. Spousal caregivers of dementia victims: longitudinal changes in immunity and health. Psychosom Med. 1991;53(4):345‐362. - PubMed

LinkOut - more resources