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. 2021 Jan:92:102867.
doi: 10.1016/j.midw.2020.102867. Epub 2020 Oct 23.

Creating the Capacity to Screen Deaf Women for Perinatal Depression: A Pilot Study

Melissa L Anderson  1 , Kelly S Wolf Craig  2 , Sheri Hostovsky  2 , Maureen Bligh  2 , Emily Bramande  3 , Kristin Walker  2 , Kathleen Biebel  4 , Nancy Byatt  2
Affiliations

Creating the Capacity to Screen Deaf Women for Perinatal Depression: A Pilot Study

Melissa L Anderson et al. Midwifery. 2021 Jan.

Abstract

Objective: Compared to hearing women, Deaf female sign language users receive sub-optimal maternal health care and report more dissatisfaction with their prenatal care experiences. As healthcare providers begin to regularly screen for perinatal depression, validated screening tools are not accessible to Deaf women due to severe disparities in English literacy and health literacy.

Design and setting: We conducted a one-year, community-engaged pilot study to create an initial American Sign Language (ASL) translation of the Edinburgh Postnatal Depression Scale (EPDS); conduct videophone screening interviews with Deaf perinatal women from across the United States; and perform preliminary statistical analyses of the resulting pilot data.

Participants: We enrolled 36 Deaf perinatal women between 5 weeks gestation up to one year postpartum.

Measurements and findings: Results supported the internal consistency of the full ASL EPDS, but did not provide evidence of internal consistency for the anxiety or depression subscales when presented in our ASL format. Participants reported a mean total score of 5.6 out of 30 points on the ASL EPDS (SD = 4.2). Thirty-one percent of participants reported scores in the mild depression range, six percent in the moderate range, and none in the severe range.

Key conclusions and implications: Limitations included small sample size, a restricted range of depression scores, non-normality of our distribution, and lack of a fully-standardized ASL EPDS administration due to our interview approach. Informed by study strengths, limitations, and lessons learned, future efforts will include a larger, more robust psychometric study to inform the development of a Computer-Assisted Self-Interviewing version of the ASL EPDS with automated scoring functions that hearing, non-signing medical providers can use to screen Deaf women for perinatal depression.

Keywords: American Sign Language; Community engagement; Deaf; Edinburgh Postnatal Depression Scale (EPDS); Perinatal depression.

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Conflict of interest statement

Declaration of Competing Interest None declared.

Figures

Figure 1.
Figure 1.
Histogram and Q-Q plot assessing normality of the distribution
Figure 2.
Figure 2.
Distribution of EPDS total scores by severity level
See this image and copyright information in PMC

References

    1. Alvarado R, Jadresic E, Guajardo V, Rojas G, 2015. First validation of a Spanish-translated version of the Edinburgh postnatal depression scale (EPDS) for use in pregnant women. A Chilean study. Arch Womens Ment Health 18(4), 607–612. 10.1007/s00737-014-0466-z. - DOI - PubMed
    1. American College of Obstetricians and Gynecologists, 2018. ACOG Committee Opinion No. 757: Screening for Perinatal Depression. Obstet Gynecol 132(5), e208–e212. 10.1097/AOG.0000000000002927. - DOI - PubMed
    1. Barnett S, McKee M, Smith SR, Pearson TA, 2011. Deaf sign language users, health inequities, and public health: opportunity for social justice. Preventing chronic disease 8(2), A45, http://www.ncbi.nlm.nih.gov/pubmed/21324259. - PMC - PubMed
    1. Benvenuti P, Ferrara M, Niccolai C, Valoriani V, Cox JL, 1999. The Edinburgh Postnatal Depression Scale: validation for an Italian sample. J Affect Disord 53(2), 137–141. 10.1016/s0165-0327(98)00102-5. - DOI - PubMed
    1. Bergant AM, Heim K, Ulmer H, Illmensee K, 1998. Early postnatal depressive mood: associations with obstetric and psychosocial factors. Journal of Psychosomatic Research 46(4), 391–394. 10.1016/S0022-3999(98)00116-0. - DOI - PubMed