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Multicenter Study
. 2021 May 4;15(5):766-773.
doi: 10.1093/ecco-jcc/jjaa244.

The IBD-disk Is a Reliable Tool to Assess the Daily-life Burden of Patients with Inflammatory Bowel Disease

Sara Tadbiri  1 , Maria Nachury  2 , Yoram Bouhnik  3 , Melanie Serrero  4 , Xavier Hébuterne  5 , Xavier Roblin  6 , Julien Kirchgesner  7 , Guillaume Bouguen  8 , Denis Franchimont  9 , Guillaume Savoye  10 , Anthony Buisson  11 , Edouard Louis  12 , Stephane Nancey  13 , Vered ABitbol  14 , Jean-Marie Reimund  15 , Olivier DeWit  16 , Lucine Vuitton  17 , Nicolas Matthieu  18 , Laurent Peyrin-Biroulet  19 , Cyrielle Gilletta  20 , Matthieu Allez  21 , Stephanie Viennot  22 , Caroline Trang-Poisson  23 , Nina Dib  24 , Hedia Brixi  25 , Medina Boualit  26 , Laurianne Plastaras  27 , Lucile Boivineau  28 , Mathurin Fumery  29 , Ludovic Caillo  30 , David Laharie  31 , Aurelien Amiot  1 ; GETAID-IBD-disk study group
Collaborators, Affiliations
Free article
Multicenter Study

The IBD-disk Is a Reliable Tool to Assess the Daily-life Burden of Patients with Inflammatory Bowel Disease

Sara Tadbiri et al. J Crohns Colitis. .
Free article

Abstract

Background and aim: The inflammatory bowel disease [IBD]-disk is a 10-item self-questionnaire that is used to assess IBD-related disability. The aim of the present study was to evaluate this tool in the assessment of IBD daily-life burden.

Methods: A 1-week cross-sectional study was conducted in 42 centres affiliated in France and Belgium. Patients were asked to complete the IBD-disk [best score: 0, worst score: 100] and a visual analogue scale [VAS] of IBD daily-life burden [best score: 0, worst score: 10]. Analyses included internal consistency, correlation analysis, and diagnostic performance assessment.

Results: Among the 2011 IBD outpatients who responded to the survey [67.8% of the patients had Crohn's disease], 49.9% were in clinical remission. The IBD-disk completion rate was 73.8%. The final analysis was conducted in this population [n = 1455 patients]. The mean IBD-disk score and IBD daily-life burden VAS were 39.0 ± 23.2 and 5.2 ± 2.9, respectively. The IBD-disk score was well correlated with the IBD daily-life burden VAS [r = 0.67; p <0.001]. At an optimal IBD-disk cut-off of 40, the area under the receiver operating characteristic curve [AUROC] for high IBD daily-life burden [VAS >5] was 0.81 (95% confidence interval [CI]: 0.79-0.83; p <0.001).

Conclusions: In a large cohort of patients, the IBD-disk score was well correlated with IBD daily-life burden, and it could be used in clinical practice.

Keywords: Crohn’s disease; disability; inflammatory bowel disease; patient-reported outcome; ulcerative colitis.

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