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. 2021 Jun;110(6):1730-1740.
doi: 10.1111/apa.15694. Epub 2021 Jan 13.

Parental experiences of their infant's hospital admission undergoing cardiac surgery: A systematic review

Marjorie A C P de Man  1 , Elisabeth W Segers  1 , Renske Schappin  2 , Kees van der Leeden  1 , Roelie M Wösten-van Asperen  1 , Hans Breur  1 , Carolina de Weerth  3 , Agnes van den Hoogen  1
Affiliations

Parental experiences of their infant's hospital admission undergoing cardiac surgery: A systematic review

Marjorie A C P de Man et al. Acta Paediatr. 2021 Jun.

Abstract

Aim: To explore parents' experiences of parenting a child hospitalised with congenital heart disease (CHD) and undergoing surgery.

Methods: Five electronic databases were systematically searched for articles describing the experiences of parents with a child with a CHD. A thematic analysis approach was used to identify the most common themes.

Results: A total of 188 articles were identified. Eight studies were included in the review. Four themes emerged, including balancing the parental role, experiencing anticipatory grief, decreasing parental stress using coping strategies and professional support.

Conclusion: Having a child with CHD undergoing heart surgery is a stressful experience due to, among other things, the different situation-related parenting role during the hospital stay and feelings of anticipatory grief. Healthcare professionals in the PICU have an essential role in supporting parents and understanding the needs that are crucial for the parents in order to provide better support and reduce stress and anxiety. More qualitative research regarding the pathway from the prenatal diagnosis through the early childhood period is warranted.

Keywords: congenital heart disease; paediatrics; parental experiences; systematic review.

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Conflict of interest statement

The authors have no conflicts of interest to declare.

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References

    1. van der Linde D, Konings EEM, Slager MA, et al. Birth prevalence of congenital heart disease worldwide: a systematic review and meta analyses. J Am Coll Cardio. 2011;58:2241‐2247. - PubMed
    1. Woolf‐King SE, Anger A, Arnold EA, Weiss SJ, Teitel D. Mental health among parents of children with critical congenital heart defects: a systematic review. J Am Heart Assoc. 2017;6:e004862. 10.1161/JAHA.116 - DOI - PMC - PubMed
    1. Pasquali SK, Sun J‐L, d'Almada P, et al. Center variation in hospital costs for patients undergoing congenital heart surgery. Cir Cardiovasc Qual Outcomes. 2011;4(3):306‐312. - PMC - PubMed
    1. Robbins JM, Bird TM, Tilford JM. Hospital stays, hospital charges, and in hospital deaths among infants with selected birth defects‐United States, 2003. MMWR Morb Mortal Wkly Rep. 2007;56:25‐29. - PubMed
    1. Gray DT, Pourmoghadam K, Weis J. Nationwide trends in inpatient pediatric cardiac surgery and interventional catheterization procedures from 1997–2006: on‐line estimates from the US healthcare cost and utilization project. Cir Cardiovasc Qual Outcomes. 2017;4.

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