Paediatric tube-feeding: An agenda for care improvement and research

Nick Hopwood^{1

2}, Khadeejah Moraby³, Ann Dadich⁴, Jessica Gowans⁵, Keren Pointon⁵, Anna Ierardo⁶, Claire Reilly⁵, Maryanne Syrmis⁷, Nadine Frederiksen⁸, Kate Disher-Quill⁶, Noémi Scheuring⁹, Rudolf Heves¹⁰, Chris Elliot^{6

11

12}

Affiliations

¹ School of International Studies and Education, University of Technology Sydney, Broadway, New South Wales, Australia.
² Department of Curriculum Studies, University of Stellenbosch, Stellenbosch, South Africa.
³ Central Early Childhood and Families Service, Allied Health, Women's and Children's Health Network, Adelaide, South Australia, Australia.
⁴ School of Business, Western Sydney University, Sydney, New South Wales, Australia.
⁵ Child Health Research Centre, University of Queensland, Brisbane, Queensland, Australia.
⁶ Department of Paediatrics, St George Hospital, Sydney, New South Wales, Australia.
⁷ Speech Pathology Department, Queensland Children's Hospital, Brisbane, Queensland, Australia.
⁸ Department of Occupational Therapy and Music Therapy, Queensland Children's Hospital, Brisbane, Queensland, Australia.
⁹ Department of Pediatrics, Heim Pál National Institute of Pediatrics, Budapest, Hungary.
¹⁰ Educational Technology, Web-Medu Health and Lifestyle Consulting Private Limited Company (Member of Rufusz Group), Budapest, Hungary.
¹¹ Department of Community Child Health, Sydney Children's Hospital Randwick, Sydney, New South Wales, Australia.
¹² School of Women's and Children's Health, University of New South Wales, Sydney, New South Wales, Australia.

PMID: 33277951
DOI: 10.1111/jpc.15286

Paediatric tube-feeding: An agenda for care improvement and research

Nick Hopwood et al. J Paediatr Child Health. 2021 Feb.

. 2021 Feb;57(2):182-187.

doi: 10.1111/jpc.15286. Epub 2020 Dec 5.

Authors

Affiliations

¹ School of International Studies and Education, University of Technology Sydney, Broadway, New South Wales, Australia.
² Department of Curriculum Studies, University of Stellenbosch, Stellenbosch, South Africa.
³ Central Early Childhood and Families Service, Allied Health, Women's and Children's Health Network, Adelaide, South Australia, Australia.
⁴ School of Business, Western Sydney University, Sydney, New South Wales, Australia.
⁵ Child Health Research Centre, University of Queensland, Brisbane, Queensland, Australia.
⁶ Department of Paediatrics, St George Hospital, Sydney, New South Wales, Australia.
⁷ Speech Pathology Department, Queensland Children's Hospital, Brisbane, Queensland, Australia.
⁸ Department of Occupational Therapy and Music Therapy, Queensland Children's Hospital, Brisbane, Queensland, Australia.
⁹ Department of Pediatrics, Heim Pál National Institute of Pediatrics, Budapest, Hungary.
¹⁰ Educational Technology, Web-Medu Health and Lifestyle Consulting Private Limited Company (Member of Rufusz Group), Budapest, Hungary.
¹¹ Department of Community Child Health, Sydney Children's Hospital Randwick, Sydney, New South Wales, Australia.
¹² School of Women's and Children's Health, University of New South Wales, Sydney, New South Wales, Australia.

PMID: 33277951
DOI: 10.1111/jpc.15286

Abstract

This article presents an agenda to improve the care and wellbeing of children with paediatric feeding disorder who require tube feeding (PFD-T). PFD-T requires urgent attention in practice and research. Priorities include: routine collection of PFD-T data in health-care records; addressing the tube-feeding lifecycle; and reducing the severity and duration of disruption caused by PFD-T where possible. This work should be underpinned by principles of involving, respecting and connecting families.

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References

1. Hopwood N, Elliot C, Moraby K, Dadich A. Parenting children who are enterally fed: How families go from surviving to thriving. Child Care Health Dev. 2020; 46: 741-8.
1. Estrem HH, Thoyre SM, Knafl KA, Frisk Pados B, Van Riper M. "It's a long-term process": Description of daily family life when a child has a feeding disorder. J. Pediatr. Health Care 2018; 32: 340-7.
1. Horton J, Atwood C, Gnagi S, Teufel R, Clemmens C. Temporal trends of pediatric dysphagia in hospitalized patients. Dysphagia 2018; 33: 655-61.
1. Puntis JW. Sepcialist feeding clinics. Arch. Dis. Child. 2012; 93: 164-7.
1. Krom H, van Zundert SMC, Otten MGM, van der Sluijs Veer L, Benninga MA, Kindermann A. Prevalence and side effects of pediatric home tube feeding. Clin. Nutr. 2019; 38: 234-9.

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Paediatric tube-feeding: An agenda for care improvement and research

Affiliations

Paediatric tube-feeding: An agenda for care improvement and research

Authors

Affiliations

Abstract

References

MeSH terms

Grants and funding

LinkOut - more resources

Full Text Sources

Medical