Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
Review
. 2020;13(4):461-466.
doi: 10.3233/PRM-200735.

Prenatal counseling: Guidelines for the care of people with spina bifida

Affiliations
Review

Prenatal counseling: Guidelines for the care of people with spina bifida

Paige Terrien Church et al. J Pediatr Rehabil Med. 2020.

Abstract

As the diagnosis of Spina Bifida (SB) is often made prenatally, SB-specific prenatal counseling is needed. It is essential to provide information about medical care and lifelong impact of this diagnosis, treatment options available to women carrying fetuses affected, and resources that will assist in the care of individuals with SB. This article outlines the SB Prenatal Counseling Guidelines from the 2018 Spina Bifida Association's Fourth Edition of the Guidelines for the Care of People with Spina Bifida and acknowledges that further research in SB prenatal counseling is warranted.

Keywords: Spina bifida; counseling; fetal therapies; myelomeningocele; neural tube defects; prenatal care.

PubMed Disclaimer

Conflict of interest statement

The authors have no conflicts of interest to report.

References

    1. Copp AJ, Stanier P, Greene NDE. Neural tube defects: recent advances, unsolved questions, and controversies. Lancet Neurol. 2013; 13: 799-810. doi: 10.1016/S1474-4422(13)70110-8. - DOI - PMC - PubMed
    1. Houtrow A, Dicianno B. Advances in spina bifida: from the womb to adulthood. Curr Phys Med Rehabil Rep. 2014; 2: 71-78. doi: 10.1007/s401141-014-0046-1. - DOI
    1. Chaplin J, Schweitzer R, Perkoulidis S. Experiences of prenatal diagnosis of Spina Bifida or hydrocephalus in parents who decide to continue with their pregnancy. J Genetic Couns. 2005; 14: 151-62. doi: 10.1007/s10897-005-0488-9. - DOI - PubMed
    1. Antiel R, Janvier A, Feudtner C et al. The experience of parents with children with myelomeningocele who underwent prenatal surgery. J Pediatr Rehab Med. 2018; 11: 1-9. doi: 10.3233/PRM-170483. - DOI - PubMed
    1. Bhogal AK, Brunger F. Prenatal genetic counseling in cross-cultural medicine: a framework for family physicians. Canadian Family Phys. 2010; 56(10): 993-99. - PMC - PubMed

Publication types