Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
Review
. 2020;13(4):663-673.
doi: 10.3233/PRM-200761.

Neuropsychological care guidelines for people with spina bifida

Jennifer T Queally  1   2 , Marcia A Barnes  3 , Heidi Castillo  4   5 , Jonathan Castillo  4   5 , Jack M Fletcher  6
Affiliations
Review

Neuropsychological care guidelines for people with spina bifida

Jennifer T Queally et al. J Pediatr Rehabil Med. 2020.

Abstract

While the neuropsychological profile for individuals with Spina Bifida (SB) can vary, often certain patterns of strengths and weaknesses are evident across the lifespan. Understanding variability related to neural structure, genetics, ethnicity, and the environment is key to understanding individual differences in outcomes and can be vital in planning interventions and tracking progress. This article outlines the SB Guideline for the Neuropsychological Care of People with Spina Bifida from the 2018 Spina Bifida Association's Fourth Edition of the Guidelines for the Care of People with Spina Bifida and acknowledges that further research in SB neurocognitive profiles is warranted.

Keywords: Spina bifida; developmental disabilities; guidelines; myelomeningocele; neural tube defects; neuropsychology.

PubMed Disclaimer

Conflict of interest statement

The authors have no conflict of interest to report.

References

    1. Dennis M, Landry SH, Barnes MH, Fletcher JM. A model of neurocognitive function in spina bifida over the lifespan: A model of core and functional deficits. Journal of the International Neuropsychological Society. 2006; 12: 285-296. - PubMed
    1. Dennis M, Barnes MA. The cognitive phenotype of spina bifida meningomyelocele. Dev Disabil Res Rev. 2010; 16(1): 31-9. doi: 10.1002/ddrr.89. - DOI - PMC - PubMed
    1. Fletcher JM, Ostermaier KK, Cirino PT, Dennis M. Neurobehavioral outcomes in spina bifida: Processes versus outcomes J Pediatr Rehabil Med. 2008; 1(4): 311-24. - PMC - PubMed
    1. Juranek J, Salman MS. Anomalous development of brain structure and function in spina bifida myelomeningocele. Dev Disabil Res Rev. 2010; 16(1): 23-30. doi: 10.1002/ddrr.88. - DOI - PMC - PubMed
    1. Fletcher JM, Copeland K, Frederick JA, Blaser SE, Kramer KA, Northrup H, et al. Spinal lesion level in spina bifida: A source of neural and cognitive heterogeneity. J Neurosurg. 2005. Apr; 102(3 Suppl): 268-79. doi: 10.3171/ped.2005.102.3.0268. - DOI - PubMed

Publication types