Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
. 2021 Mar-Apr;32(2):160-173.
doi: 10.1097/JNC.0000000000000225.

Family Support for Adolescent Girls and Young Women Living With HIV in Zambia: Benefits, Challenges, and Recommendations for Intervention Development

Affiliations

Family Support for Adolescent Girls and Young Women Living With HIV in Zambia: Benefits, Challenges, and Recommendations for Intervention Development

Sarah T Roberts et al. J Assoc Nurses AIDS Care. 2021 Mar-Apr.

Abstract

Lack of family involvement is barrier to antiretroviral therapy adherence among adolescent girls and young women (AGYW). This study assessed family support for AGYW's engagement along the HIV care continuum to inform the design of a family-focused intervention in Lusaka, Zambia. We conducted 16 in-depth interviews and four focus group discussions with 40 AGYW living with HIV. Three strategies were identified to strengthen family support. First, emotional and instrumental support are highly valued by AGYW and should be further developed or reinforced. Second, AGYW wanted more informational support and open discussion of HIV from family, and an intervention should aim to enhance these types of support. Third, existing appraisal support reinforced anticipated stigma among AGYW and discouraged disclosure, yet participants wished for more interactions with peers living with HIV. Appraisal support should therefore be reframed to help AGYW decide to whom they should disclose and how to do so safely.

PubMed Disclaimer

Conflict of interest statement

Disclosures

The authors report no real or perceived vested interests related to this article that could be construed as a conflict of interest.

Figures

Figure 1:
Figure 1:. Key elements of a family-based intervention to support AGYW living with HIV
AGYW = Adolescent girls and young women; ART = Antiretroviral therapy; SRH = Sexual and Reproductive Health

References

    1. Adejumo OA, Malee KM, Ryscavage P, Hunter SJ, & Taiwo BO (2015). Contemporary issues on the epidemiology and antiretroviral adherence of HIV-infected adolescents in sub-Saharan Africa: A narrative review. Journal of the International AIDS Society, 18(1). 10.7448/IAS.18.1.20049 - DOI - PMC - PubMed
    1. Ammon N, Mason S, & Corkery JM (2018). Factors impacting antiretroviral therapy adherence among human immunodeficiency virus-positive adolescents in Sub-Saharan Africa: a systematic review. Public Health, 157, 20–31. 10.1016/j.puhe.2017.12.010 - DOI - PubMed
    1. Bastien S, Kajula LJ, & Muhwezi WW (2011). A review of studies of parent-child communication about sexuality and HIV/AIDS in sub-Saharan Africa. Reproductive Health, 8, 25. 10.1186/1742-4755-8-25 - DOI - PMC - PubMed
    1. Bikaako-Kajura W, Luyirika E, Purcell DW, Downing J, Kaharuza F, Mermin J, Malamba S, & Bunnell R (2006). Disclosure of HIV status and adherence to daily drug regimens among HIV-infected children in Uganda. AIDS and Behavior, 10(SUPPL. 7), 85–93. 10.1007/s10461-006-9141-3 - DOI - PubMed
    1. Brown K, Williams DB, Kinchen S, Saito S, Radin E, Patel H, Low A, Delgado S, Mugurungi O, Musuka G, Tippett Barr BA, Nwankwo-Igomu EA, Ruangtragool L, Hakim AJ, Kalua T, Nyirenda R, Chipungu G, Auld A, Kim E, … Voetsch AC (2018). Status of HIV epidemic control among adolescent girls and young women aged 15–24 Years - seven african countries, 2015–2017. Morbidity and Mortality Weekly Report, 67(1), 29–32. 10.15585/mmwr.mm6701a6 - DOI - PMC - PubMed

Publication types

LinkOut - more resources