Measuring Bladder Health: Development and Cognitive Evaluation of Items for a Novel Bladder Health Instrument
- PMID: 33350312
- PMCID: PMC8068674
- DOI: 10.1097/JU.0000000000001581
Measuring Bladder Health: Development and Cognitive Evaluation of Items for a Novel Bladder Health Instrument
Abstract
Purpose: We describe the item development and cognitive evaluation process used in creating the Prevention of Lower Urinary Tract Symptoms Bladder Health Instrument (PLUS-BHI).
Materials and methods: Questions assessing bladder health were developed using reviews of published items, expert opinion, and focus groups' transcript review. Candidate items were tested through cognitive interviews with community-dwelling women and an online panel survey. Items were assessed for comprehension, language, and response categories and modified iteratively to create the PLUS-BHI.
Results: Existing measures of bladder function (storage, emptying, sensation components) and bladder health impact required modification of time frame and response categories to capture a full range of bladder health. Of the women 167 (18-80 years old) completed individual interviews and 791 women (18-88 years) completed the online panel survey. The term "bladder health" was unfamiliar for most and was conceptualized primarily as absence of severe urinary symptoms, infection, or cancer. Coping mechanisms and self-management strategies were central to bladder health perceptions. The inclusion of prompts and response categories that captured infrequent symptoms increased endorsement of symptoms across bladder function components.
Conclusions: Bladder health measurement is challenged by a lack of awareness of normal function, use of self-management strategies to mitigate impact on activities, and a common tendency to overlook infrequent lower urinary tract symptoms. The PLUS-BHI is designed to characterize the full spectrum of bladder health in women and will be validated for research use.
Keywords: health status indicators; health surveys; interviews as topic; lower urinary tract symptoms; urinary bladder.
Conflict of interest statement
Conflicts of Interest: No conflict of interest has been declared by the authors.
Figures
Comment in
-
Editorial Comment.J Urol. 2021 May;205(5):1414. doi: 10.1097/JU.0000000000001581.01. Epub 2021 Mar 17. J Urol. 2021. PMID: 33728940 No abstract available.
References
-
- Harlow BL, Bavendam TG, Palmer MH et al.: The Prevention of Lower Urinary Tract Symptoms (PLUS) Research Consortium: A Transdisciplinary Approach Toward Promoting Bladder Health and Preventing Lower Urinary Tract Symptoms in Women Across the Life Course. J Womens Health (Larchmt), 27: 283, 2018 - PMC - PubMed
-
- McDowell I: Measuring health : a guide to rating scales and questionnaires, 3rd ed. New York: OXFORD UNIVERSITY PRESS, 2006
-
- Avery K, Donovan J, Peters TJ et al.: ICIQ: a brief and robust measure for evaluating the symptoms and impact of urinary incontinence. Neurourol Urodyn, 23: 322, 2004 - PubMed
-
- van der Vaart CH, de Leeuw JR, Roovers JP et al.: Measuring health-related quality of life in women with urogenital dysfunction: the urogenital distress inventory and incontinence impact questionnaire revisited. Neurourol Urodyn, 22: 97, 2003 - PubMed
