Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
. 2021 Feb;24(2):197-202.
doi: 10.1111/1756-185X.14043. Epub 2020 Dec 23.

YouTube as a source of information on fibromyalgia

Tugba Ozsoy-Unubol  1 , Ebru Alanbay-Yagci  2
Affiliations

YouTube as a source of information on fibromyalgia

Tugba Ozsoy-Unubol et al. Int J Rheum Dis. 2021 Feb.

Abstract

Aim: The internet has gained popularity as a health information source for patients. YouTube is one of the biggest platforms used worldwide. Several studies showed that quality of the information on YouTube videos for patient information is poor. This study aimed to evaluate the content and quality of YouTube videos, as a source of patient information for fibromyalgia (FM).

Methods: In this cross-sectional study, a YouTube search with the keyword "fibromyalgia" was performed, and the first 200 videos were listed according to relevancy. Advertisements, duplicate videos, videos in languages other than English, and videos without audio were excluded. Video features (number of "likes", "dislikes", views, length of video), and source of upload were recorded. DISCERN and Journal of the American Medical Association (JAMA) benchmark criteria were used for quality analysis. Video quality was assessed according to the source of upload and video features. The correlation analysis was performed between video features, JAMA, and DISCERN scores.

Results: A total number of 102 videos were analyzed. The most common source of upload was physicians and majority of the content (55.8%) was about symptoms and treatment. Mean DISCERN and JAMA scores were 35.7 and 2.2, respectively. These scores were highest in videos uploaded by physicians (52.7 and 2.6, respectively). There is a positive correlation between the duration of the video, DISCERN, and JAMA scores.

Conclusion: The majority of YouTube content has poor quality. Health professionals should be aware of the importance of health-related information on YouTube and provide high-quality accurate and up-to-date content.

Keywords: DISCERN; YouTube; fibromyalgia; internet; quality.

PubMed Disclaimer

Similar articles

See all similar articles

Cited by

See all "Cited by" articles

References

    1. Wolfe F, Anderson J, Harkness D, et al. A prospective, longitudinal, multicenter study of service utilization and costs in fibromyalgia. Arthritis Rheum. 1997;40(9):1560-1570.
    1. Chinn S, Caldwell W, Gritsenko K. Fibromyalgia pathogenesis and treatment options update. Curr Pain Headache Rep. 2016;20(4):25.
    1. Clauw DJ. Fibromyalgia: a clinical review. JAMA. 2014;311(15):1547-1555.
    1. Wolfe F, Ross K, Anderson J, Russell IJ, Hebert L. The prevalence and characteristics of fibromyalgia in the general population. Arthritis Rheum. 1995;38(1):19-28.
    1. Vincent A, Lahr BD, Wolfe F, et al. Prevalence of fibromyalgia: a population-based study in Olmsted County, Minnesota, utilizing the Rochester Epidemiology Project. Arthritis Care Res (Hoboken). 2013;65(5):786-792.

LinkOut - more resources