Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
. 2022 May;30(3):908-917.
doi: 10.1111/hsc.13238. Epub 2020 Dec 23.

Stakeholder involvement in dementia research: A qualitative approach with healthy senior citizens and providers of dementia care in Germany

Antonia Kowe  1 , Stefanie Köhler  2 , Olga A Klein  3 , Corinna Lüthje  4 , Judith Kalzendorf  2 , Sarah Weschke  1 , Stefan Teipel  5
Affiliations

Stakeholder involvement in dementia research: A qualitative approach with healthy senior citizens and providers of dementia care in Germany

Antonia Kowe et al. Health Soc Care Community. 2022 May.

Abstract

Engaging stakeholders in health-related research is becoming commonplace internationally and is increasingly considered best research practice to improve care management services. Many different groups have a stake in dementia care, but the evidence base for stakeholder involvement in dementia research is still small. The aim of this study was to explore views of two major stakeholder groups of dementia care in research priority setting and how they would want to be involved in dementia research. Group discussions were carried out with 47 participants divided into two groups: (a) healthy senior citizens and (b) providers of dementia care. Ensuing responses were analysed using descriptive content analysis. The main research interest of both groups was similar, but senior citizens and providers of dementia care varied in how they perceived the roles of researchers and stakeholders involved. Groups also differed with respect to the amount of time they would be willing to invest into research. The results contribute to our knowledge of group-specific stakeholder priorities and attitudes regarding participatory involvement in dementia research.

Keywords: dementia; participative research; priority setting; public engagement; stakeholder involvement.

PubMed Disclaimer

References

REFERENCES

    1. Arnstein, S. R. (1969). A ladder of citizen participation. Journal of the American Institute of Planners, 35, 216-224. https://doi.org/10.1080/01944366908977225
    1. Bartlett, R., Milne, R., & Croucher, R. (2019). Strategies to improve recruitment of people with dementia to research studies. Dementia, 18(7-8), 2494-2504. https://doi.org/10.1177/1471301217748503
    1. Bergold, J., & Thomas, S. (2012). Participatory research methods: A methodological approach in motion. Historical Social Research/Historische Sozialforschung, 191-222, https://doi.org/10.12759/hsr.37.2012.4.191-222
    1. Bethell, J., Pringle, D., Chambers, L. W., Cohen, C., Commisso, E., Cowan, K., Fehr, P., Laupacis, A., Szeto, P., & McGilton, K. S. (2018). Patient and public involvement in identifying dementia research priorities. Journal of the American Geriatrics Society, 66, 1608-1612. https://doi.org/10.1111/jgs.15453
    1. Brooks, J., Savitch, N., & Gridley, K. (2017). Removing the'gag': Involving people with dementia in research as advisers and participants. Social Research Practice, 3-14.

Publication types

LinkOut - more resources