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. 2021 Feb;26(1):53-55.
doi: 10.1177/1358863X20974452. Epub 2020 Dec 29.

Screening for pulmonary and brain vascular malformations is the North American standard of care for patients with hereditary hemorrhagic telangiectasia (HHT): A survey of HHT Centers of Excellence

Alexandra Kilian  1 , Marianne S Clancy  2 , Scott Olitsky  2 , James R Gossage  3 , Marie E Faughnan  1   4
Affiliations

Screening for pulmonary and brain vascular malformations is the North American standard of care for patients with hereditary hemorrhagic telangiectasia (HHT): A survey of HHT Centers of Excellence

Alexandra Kilian et al. Vasc Med. 2021 Feb.
No abstract available

Keywords: arteriovenous malformation; cerebral; hereditary hemorrhagic telangiectasia (HHT); pulmonary; rare diseases; screening.

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Conflict of interest statement

Declaration of conflicting interests: The authors declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.

References

    1. Kjeldsen AD, Vase P, Green A. Hereditary haemorrhagic telangiectasia: A population-based study of prevalence and mortality in Danish patients. J Intern Med 1999; 245: 31–39. - PubMed
    1. Donaldson J, McKeever TM, Hall IP, et al. The UK prevalence of hereditary haemorrhagic telangiectasia and its association with sex, socioeconomic status and region of residence: A population-based study. Thorax 2014; 69: 161–167. - PubMed
    1. Guttmacher AE, Marchuk DA, White RI., Jr. Hereditary hemorrhagic telangiectasia. N Engl J Med 1995; 333: 918–924. - PubMed
    1. Faughnan ME, Palda VA, Garcia-Tsao G, et al. International guidelines for the diagnosis and management of hereditary haemorrhagic telangiectasia. J Med Genet 2011; 48: 73–87. - PubMed
    1. Hosman AE, de Gussem EM, Balemans WA, et al. Screening children for pulmonary arteriovenous malformations: Evaluation of 18 years of experience. Pediatr Pulmonol 2017; 52: 1206–1211. - PubMed

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