Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
Review
. 2021 Dec;36(12):1514-1535.
doi: 10.1080/08870446.2020.1867136. Epub 2021 Jan 4.

Informal caregiver burden for solid tumour cancer patients: a review and future directions

Affiliations
Review

Informal caregiver burden for solid tumour cancer patients: a review and future directions

Kanjana Thana et al. Psychol Health. 2021 Dec.

Abstract

Objective: Recent shifts in healthcare delivery and treatment for solid tumour cancer patients have modified the responsibilities of informal caregivers. The objective of this study was to: review informal caregiver burden factors and determine areas where future research is needed.

Methods: The Arksey and O'Malley's framework and a modified Preferred Reporting Items for Systematic Reviews and Meta-Analyses were used in conducting this review. Research literature was systematically searched using five-electronic databases, including PubMed, PsycINFO, Cochrane, CINAHL, and SCOPUS, and reference lists from included studies to identify publications since 2010. Inclusion criterion was caregivers providing home-based care to a cancer patient.

Results: The search yielded 43 eligible papers of 2119 reviewed, including articles from over 17 countries. Caregiver physical and psychological health, financial strain, and social isolation, as well as limited family and social support continued to be important factors contributing to high levels of caregiver burden. Less recognised factors affecting higher burden included caregivers' self-esteem, male gender, and the dynamic nature of cancer treatment.

Conclusions: This review updates the state of the science on informal caregiver burden when caring for patients with solid tumour cancers and informs future interventions on how to reduce this burden.

Keywords: Cancer; burden; caregiving; review.

PubMed Disclaimer

Conflict of interest statement

Disclosure statement

The authors declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.

Figures

Figure 1.
Figure 1.
A PRISMA flow chart of article selection.

References

    1. Akpan-Idiok PA, & Anarado AN (2014). Perceptions of burden of caregiving by informal caregivers of cancer patients attending University of Calabar Teaching Hospital, Calabar, Nigeria. The Pan African Medical Journal, 18, 159. 10.11604/pamj.2014.18.159.2995 - DOI - PMC - PubMed
    1. American Cancer Society (2018). Cancer facts and figures 2018. American Cancer Society. https://www.cancer.org/research/cancer-facts-statistics/all-cancer-facts...
    1. Antonarakis ES (2018). AR signaling in human malignancies: Prostate cancer and beyond. Cancers, 10(1), 22. 10.3390/cancers10010022 - DOI - PMC - PubMed
    1. Arksey H, & O’Malley L (2005). Scoping studies: towards a methodological framework. International Journal of Social Research Methodology, 8(1), 19–32. 10.1080/1364557032000119616 - DOI
    1. Ávila M, Brandão T, Coimbra JL, Lopez F, & Matos PM (2016). Experiencing an intimate partner’s breast cancer: Attachment, caregiving, and burden in men. Psychiatry, 79(3), 236–248. 10.1080/00332747.2016.1158003 - DOI - PubMed

Publication types

LinkOut - more resources