Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
. 2021 Jan;38(1):3-15.
doi: 10.1007/s10815-020-01983-4. Epub 2021 Jan 6.

A View from the past into our collective future: the oncofertility consortium vision statement

Teresa K Woodruff  1 Lauren Ataman-Millhouse  2 Kelly S Acharya  3 Teresa Almeida-Santos  4   5   6 Antoinette Anazodo  7   8   9 Richard A Anderson  10 Leslie Appiah  11 Joy Bader  12 Kerri Becktell  13 Robert E Brannigan  14 Lesley Breech  15 Maria T Bourlon  16 Žana Bumbuliene  17 Karen Burns  18   19 Lisa Campo-Engelstein  20 Jacira R Campos  21 Grace M Centola  22   23   24 Mauricio Barbour Chehin  25 Diane Chen  26   27 Michel De Vos  28   29   30 Francesca E Duncan  2 Ahmed El-Damen  31   32 Douglas Fair  33 Yemi Famuyiwa  34   35 Patricia Y Fechner  36 Paula Fontoura  37 Olivia Frias  38 Sabrina A Gerkowicz  39   40 Jill Ginsberg  41 Clarisa R Gracia  42 Kara Goldman  43 Veronica Gomez-Lobo  44 Brent Hazelrigg  12 Michael H Hsieh  45 Luis R Hoyos  46 Alfonso Hoyos-Martinez  47 Robert Jach  48 Jacek Jassem  49 Murid Javed  50 Yasmin Jayasinghe  51 Roohi Jeelani  52   53 Jacqueline S Jeruss  54 Nalini Kaul-Mahajan  55   56 Jessica Keim-Malpass  57   58 Tyler G Ketterl  59   60 Mohamed Khrouf  61 Dana Kimelman  62 Atsuko Kusuhara  63 William H Kutteh  64   65 Monica M Laronda  66   67 Jung Ryeol Lee  68 Vicky Lehmann  69 Joseph M Letourneau  70 Lynda K McGinnis  71 Eileen McMahon  72   73 Lillian R Meacham  74 Monserrat Fabiola Velez Mijangos  75 Molly Moravek  76   77 Leena Nahata  78 George Moses Ogweno  79   80 Kyle E Orwig  81 Mary Ellen Pavone  43 Fedro Alessandro Peccatori  82 Romina Ileana Pesce  83 Hanna Pulaski  81 Gwendolyn Quinn  84 Ramiro Quintana  85 Tomas Quintana  85 Bruno Ramalho de Carvalho  86 Rosalind Ramsey-Goldman  87 Joyce Reinecke  88 Fernando M Reis  89 Julie Rios  15   38 Alice S Rhoton-Vlasak  90 Kenny A Rodriguez-Wallberg  91 Cassandra Roeca  92 Seth J Rotz  93 Erin Rowell  66   67 Mahmoud Salama  2 Amanda J Saraf  94 Anibal Scarella  95   96 Tara Schafer-Kalkhoff  97 Deb Schmidt  98 Suneeta Senapati  42 Divya Shah  42 Ariella Shikanov  99 Margarett Shnorhavorian  100 Jodi L Skiles  101 James F Smith  102 Kristin Smith  43 Fabio Sobral  103 Kyle Stimpert  104 H Irene Su  105 Kouhei Sugimoto  106 Nao Suzuki  107 Mili Thakur  108   109 David Victorson  110 Luz Viale  85 Wendy Vitek  102   111 W Hamish Wallace  112 Ellen A Wartella  113 Lynn M Westphal  114 Stacy Whiteside  115 Lea H Wilcox  12 Christine Wyns  116 Shuo Xiao  117 Jing Xu  118   119 Mary Zelinski  118   119
Affiliations

A View from the past into our collective future: the oncofertility consortium vision statement

Teresa K Woodruff et al. J Assist Reprod Genet. 2021 Jan.

Abstract

Purpose: Today, male and female adult and pediatric cancer patients, individuals transitioning between gender identities, and other individuals facing health extending but fertility limiting treatments can look forward to a fertile future. This is, in part, due to the work of members associated with the Oncofertility Consortium.

Methods: The Oncofertility Consortium is an international, interdisciplinary initiative originally designed to explore the urgent unmet need associated with the reproductive future of cancer survivors. As the strategies for fertility management were invented, developed or applied, the individuals for who the program offered hope, similarly expanded. As a community of practice, Consortium participants share information in an open and rapid manner to addresses the complex health care and quality-of-life issues of cancer, transgender and other patients. To ensure that the organization remains contemporary to the needs of the community, the field designed a fully inclusive mechanism for strategic planning and here present the findings of this process.

Results: This interprofessional network of medical specialists, scientists, and scholars in the law, medical ethics, religious studies and other disciplines associated with human interventions, explore the relationships between health, disease, survivorship, treatment, gender and reproductive longevity.

Conclusion: The goals are to continually integrate the best science in the service of the needs of patients and build a community of care that is ready for the challenges of the field in the future.

Keywords: Fertility preservation; Oncofertility; cancer.

PubMed Disclaimer

Figures

Fig. 1
Fig. 1
Purple pins represent locations of the Oncofertility Professional Engagement Network (OPEN) member centers. OPEN consists of individuals or groups from 45 countries and is linked by basic and clinical research a high-level of shared protocols and experiences. Member leverage work done in affiliated centers to accelerate their formation and services offered [–7]
Fig. 2
Fig. 2
Appreciative inquiry survey
Fig. 3
Fig. 3
Vision, mission, and value statement issued by the oncofertility leadership team

References

    1. Smith BM, Duncan FE, Ataman L, Smith K, Quinn GP, Chang RJ, Finlayson C, Orwig K, Valli-Pulaski H, Moravek MB, Zelinski MB, Irene Su H, Vitek W, Smith JF, Jeruss JS, Gracia C, Coutifaris C, Shah D, Nahata L, Gomez-Lobo V, Appiah LC, Brannigan RE, Gillis V, Gradishar W, Javed A, Rhoton-Vlasak AS, Kondapalli LA, Neuber E, Ginsberg JP, Muller CH, Hirshfeld-Cytron J, Kutteh WH, Lindheim SR, Cherven B, Meacham LR, Rao P, Torno L, Sender LS, Vadaparampil ST, Skiles JL, Schafer-Kalkhoff T, Frias OJ, Byrne J, Westphal LM, Schust DJ, Klosky JL, McCracken KA, Ting A, Khan Z, Granberg C, Lockart B, Scoccia B, Laronda MM, Mersereau JE, Marsh C, Pavone ME, Woodruff TK. The National Physicians Cooperative: transforming fertility management in the cancer setting and beyond. Future Oncol. 2018;14(29):3059–3072. doi: 10.2217/fon-2018-0278. - DOI - PMC - PubMed
    1. Salama M, Ataman-Millhouse L, Sobral F, Terrado G, Scarella A, Bourlon MT, et al. Barriers and opportunities of oncofertility practice in nine developing countries and the emerging oncofertility professional engagement network. JCO Glob Oncol. 2020;6. 10.1200/JGO.18.00180. - PMC - PubMed
    1. Salama M, Ataman L, Taha T, Azmy O, Braham M, Douik F, et al. Building oncofertility core competency in developing countries: experience from Egypt, Tunisia, Brazil, Peru, and Panama. JCO Glob Oncol. 2020;6. 10.1200/JGO.17.00121. - PMC - PubMed
    1. Rashedi AS, de Roo SF, Ataman LM, Edmonds ME, Silva AA, Scarella A, Horbaczewska A, Anazodo A, Arvas A, Ramalho de Carvalho B, Sartorio C, Beerendonk CCM, Diaz-Garcia C, Suh CS, Melo C, Yding Andersen C, Motta E, Greenblatt EM, Van Moer E, Zand E, Reis FM, Sanchez F, Terrado G, Rodrigues JK, de Meneses ESJM, Smitz J, Medrano J, Lee JR, Winkler-Crepaz K, Smith K, Ferreira Melo ESLH, Wildt L, Salama M, Del Mar Andres M, Bourlon MT, Vega M, Chehin MB, De Vos M, Khrouf M, Suzuki N, Azmy O, Fontoura P, Campos-Junior PHA, Mallmann P, Azambuja R, Marinho RM, Anderson RA, Jach R, Antunes RA, Mitchell R, Fathi R, Adiga SK, Takae S, Kim SH, Romero S, Chedid Grieco S, Shaulov T, Furui T, Almeida-Santos T, Nelen W, Jayasinghe Y, Sugishita Y, Woodruff TK. Survey of fertility preservation options available to patients with cancer around the globe. J Glob Oncol. 2018;4:1–16. doi: 10.1200/JGO.2016.008144. - DOI - PMC - PubMed
    1. Rashedi AS, de Roo SF, Ataman LM, Edmonds ME, Silva AA, Scarella A, Horbaczewska A, Anazodo A, Arvas A, Ramalho de Carvalho B, Sartorio C, Beerendonk CCM, Diaz-Garcia C, Suh CS, Melo C, Andersen CY, Motta E, Greenblatt EM, Van Moer E, Zand E, Reis FM, Sanchez F, Terrado G, Rodrigues JK, Marcos de Meneses ESJ, Smitz J, Medrano J, Lee JR, Winkler-Crepaz K, Smith K, Ferreira Melo ESLH, Wildt L, Salama M, Del Mar Andres M, Bourlon MT, Vega M, Chehin MB, De Vos M, Khrouf M, Suzuki N, Azmy O, Fontoura P, Campos-Junior PHA, Mallmann P, Azambuja R, Marinho RM, Anderson RA, Jach R, Antunes RA, Mitchell R, Fathi R, Adiga SK, Takae S, Kim SH, Romero S, Grieco SC, Shaulov T, Furui T, Almeida-Santos T, Nelen W, Jayasinghe Y, Sugishita Y, Woodruff TK. Survey of third-party parenting options associated with fertility preservation available to patients with cancer around the globe. J Glob Oncol. 2018;4:1–7. doi: 10.1200/JGO.2017.009944. - DOI - PMC - PubMed