Ethical considerations for community-based participatory research with Sami communities in North Finland
- PMID: 33454885
- PMCID: PMC8068735
- DOI: 10.1007/s13280-020-01459-w
Ethical considerations for community-based participatory research with Sami communities in North Finland
Abstract
This study examines the perspectives of Sami community members and university researchers regarding the ethical considerations for engagement in Community-Based Participatory Research (CBPR) with Sami communities in northern Finland. Key informant interviews were conducted with Sami people from Finland who were exposed to or participated in research in their communities as well as with researchers who have conducted research with the Sami in Finland across diverse topics. Five themes were identified: establishing trust, research preparation, research comprehension, research ethics, and inclusion in research. The differences in participant perspectives were compared based on their community versus researcher roles. Our findings emphasize the need for (1) strategies to develop and maintain trust between Sami communities and researchers; (2) methods to bridge concepts of bias projected onto Sami communities and researchers by the others' differing world views and beliefs about research; and (3) increased education in community-engaged methods for social and natural scientists working with Sami communities. This study supports the need for the development of formalized ethical protocols for conducting community-based engaged research with and for Sami people in Finland that ensure mutually beneficial research for all involved.
Keywords: Arctic; Community-based participatory research (CBPR); Indigenous communities; Research ethics; Sami.
Similar articles
-
Ethical and methodological issues in research with Sami experiencing disability.Int J Circumpolar Health. 2016 Jul 6;75:31656. doi: 10.3402/ijch.v75.31656. eCollection 2016. Int J Circumpolar Health. 2016. PMID: 27396747 Free PMC article.
-
Sámi traditional medicine: practices, usage, benefit, accessibility and relation to conventional medicine, a scoping review study.Int J Circumpolar Health. 2021 Dec;80(1):1924993. doi: 10.1080/22423982.2021.1924993. Int J Circumpolar Health. 2021. PMID: 34319217 Free PMC article.
-
Community-based participatory research in a heavily researched inner city neighbourhood: Perspectives of people who use drugs on their experiences as peer researchers.Soc Sci Med. 2017 Mar;176:85-92. doi: 10.1016/j.socscimed.2017.01.027. Epub 2017 Jan 21. Soc Sci Med. 2017. PMID: 28135693 Free PMC article.
-
Ethical community-engaged research: a literature review.Am J Public Health. 2013 Dec;103(12):e7-e14. doi: 10.2105/AJPH.2013.301605. Epub 2013 Oct 17. Am J Public Health. 2013. PMID: 24134352 Free PMC article. Review.
-
Ethical Considerations of Community-based Participatory Research: Contextual Underpinnings for Developing Countries.Int J Prev Med. 2014 Oct;5(10):1328-36. Int J Prev Med. 2014. PMID: 25400893 Free PMC article.
Cited by
-
Perceived Health Needs, Social Support, and Depression Among Patients with Myocardial Infarction: A Cross-Sectional Study.Healthcare (Basel). 2024 Dec 20;12(24):2570. doi: 10.3390/healthcare12242570. Healthcare (Basel). 2024. PMID: 39765997 Free PMC article.
-
The use of multiple evidence base methods to enrich climate change research and knowledge in the Arctic.Ambio. 2025 Apr;54(4):603-617. doi: 10.1007/s13280-024-02093-6. Epub 2025 Jan 25. Ambio. 2025. PMID: 39862378 Free PMC article. Review.
-
Applying community-based participatory research principles to build trust and equity in health and socio-ecological studies in Greenland.Int J Circumpolar Health. 2025 Dec;84(1):2473181. doi: 10.1080/22423982.2025.2473181. Epub 2025 Mar 5. Int J Circumpolar Health. 2025. PMID: 40040496 Free PMC article.
-
Ten "simple" rules for non-Indigenous researchers engaging Indigenous communities in Arctic research.PLoS Comput Biol. 2024 Jun 27;20(6):e1012093. doi: 10.1371/journal.pcbi.1012093. eCollection 2024 Jun. PLoS Comput Biol. 2024. PMID: 38935596 Free PMC article. No abstract available.
-
Assessment of Sámi food security in Finnish Lapland: climate change impacts and policy effectiveness.Int J Circumpolar Health. 2025 Dec;84(1):2516310. doi: 10.1080/22423982.2025.2516310. Epub 2025 Jun 15. Int J Circumpolar Health. 2025. PMID: 40518712 Free PMC article.
References
-
- ACIA Overview report. 2005. Cambridge University Press.
-
- Aikio S, Aikio-Puoskari U, Helander J. The Sami culture in Finland. Helsinki: Lapin Sivistysseura; 1994.
-
- Aikio M, Muller-Wille L. Utilization of mountain birch forests at the timberline: Sámi and Finnish approaches to locally based resource development in the North of Finland and Norway. Hamb. Begetationsgeopgr. Mitt. 2003;17:49–50.
-
- Aikio M, Muller-Wille L. Sámi approaches to mountain birch utilization in northern Sápmi (Finland and Norway) In: Wielgolaski F, editor. Plant ecology, herbivory, and human impact in Northern Mountain Birch Forests. Ecological studies. Heidelberg: Springer; 2005. pp. 255–268.
-
- Aikio M, Muller-Wille L. Methodological documentation: Question catalogue for surveys on human-birch relations in the mountain birch ecosystem in northern Fennoscandia. In: Wielgolaski F, editor. Plant ecology, herbivory, and human impact in Northern Mountain Birch Forests. Ecological studies, vol. 180, CD-ROM, Chapter 18. Heidelberg: Springer; 2005.
MeSH terms
LinkOut - more resources
Full Text Sources
Other Literature Sources