Considerations about the implementation of an autism screening program in Iran from the viewpoints of professionals and parents: a qualitative study
- PMID: 33485323
- PMCID: PMC7825177
- DOI: 10.1186/s12888-021-03061-0
Considerations about the implementation of an autism screening program in Iran from the viewpoints of professionals and parents: a qualitative study
Abstract
Background: The aims of this study were to explore to explore the viewpoints of parents of children with Autism Spectrum Disorders (ASD) and professionals regarding the implementation of screening programs for ASD, to explore the challenges of the implementation of a universal screening program for ASD in Iran from their viewpoints, and, to explore their recommendations to overcome the potential challenges.
Method: This qualitative study was conducted using an inductive content analysis, between June 2018 and December 2018, in East-Azerbaijan province of Iran. Data was collected through in-depth interviews and focus group discussions. The participants were purposively selected among two groups: representatives of health system and representatives of children with ASD. A sample of 32 parents and 30 professionals were recruited in this study.
Results: Totally, 9 main themes and 23 sub-themes were extracted in three main areas including: viewpoints of the participants about universal screening for ASD, challenges in implementation of the universal screening program, and participants' recommendations about how to overcome the potential challenges. Main challenges in implementation of the universal screening program included: shortages of ASD screening tools, weakness of the health system, lack of coordination among the ASD service providers, and social and ethical issues.
Conclusion: The parents and the professionals had different viewpoints about the implementation of ASD universal screening program in Iran. According to the professionals, there is not enough rational to implement ASD screening program for all children. However, the parents believed that universal screening program is inevitable, and it should be implemented in primary health centers during the early child-care visits. The results of this study open up unspoken issues that could help in initiating the screening program not only in Iran but also in other low- and middle-income countries as well.
Keywords: ASD; Autism Spectrum disorders; Challenges; Qualitative study; Screen.
Conflict of interest statement
The authors declare that they have no competing interests.
Similar articles
-
Perceptions of the Professionals and Parents of Children with Autism Spectrum Disorders About Autism Services; A Qualitative Study.J Autism Dev Disord. 2023 Jan;53(1):96-109. doi: 10.1007/s10803-021-05388-9. Epub 2022 Jan 4. J Autism Dev Disord. 2023. PMID: 34982323
-
The challenges of screening pre-school children for autism spectrum disorders in Iran.Disabil Rehabil. 2016 Aug;38(17):1739-47. doi: 10.3109/09638288.2015.1107637. Epub 2016 Apr 6. Disabil Rehabil. 2016. PMID: 27049352
-
Developmental Signs of Autism Spectrum Disorder in Iranian Pre-Schoolers.J Pediatr Nurs. 2021 May-Jun;58:e69-e73. doi: 10.1016/j.pedn.2021.01.006. Epub 2021 Jan 31. J Pediatr Nurs. 2021. PMID: 33536153
-
Screening for autistic spectrum disorder in early childhood.BMC Pediatr. 2021 Sep 8;21(Suppl 1):349. doi: 10.1186/s12887-021-02700-5. BMC Pediatr. 2021. PMID: 34496788 Free PMC article. Review.
-
Measles-mumps-rubella vaccine and autistic spectrum disorder: report from the New Challenges in Childhood Immunizations Conference convened in Oak Brook, Illinois, June 12-13, 2000.Pediatrics. 2001 May;107(5):E84. doi: 10.1542/peds.107.5.e84. Pediatrics. 2001. PMID: 11331734 Review.
Cited by
-
Lived Experiences of Iranian Parents of Children with Autism Spectrum Disorder: A Systematic Review.Iran J Public Health. 2023 Aug;52(8):1626-1641. doi: 10.18502/ijph.v52i8.13401. Iran J Public Health. 2023. PMID: 37744549 Free PMC article. Review.
-
Exploring the varied manifestations of structural violence in the lives of children on the autism spectrum and their families: a qualitative longitudinal study in Kurdistan, Iran.Int J Equity Health. 2023 Dec 18;22(1):263. doi: 10.1186/s12939-023-02078-z. Int J Equity Health. 2023. PMID: 38110989 Free PMC article.
-
The Psychometric Properties of the Iranian Version of Repetitive Behavior Scale-Revised (RBS-R) Questionnaire in Children With Autism Spectrum Disorder.Health Sci Rep. 2025 Jul 9;8(7):e70984. doi: 10.1002/hsr2.70984. eCollection 2025 Jul. Health Sci Rep. 2025. PMID: 40636526 Free PMC article.
References
-
- World Health Organization. Meeting report: autism spectrum disorders and other developmental disorders: from raising awareness to building capacity. Geneva: World Health Organization; 2013. https://apps.who.int/iris/handle/10665/103312.
-
- Durkin MS, Elsabbagh M, Barbaro J, Gladstone M, Happe F, Hoekstra RA, Lee LC, Rattazzi A, Stapel-Wax J, Stone WL. Autism screening and diagnosis in low resource settings: challenges and opportunities to enhance research and services worldwide. Autism Res. 2015;8(5):473–476. doi: 10.1002/aur.1575. - DOI - PMC - PubMed
-
- World Bank . World development indicators: population dynamics. Washington DC: The World Bank; 2017.
Publication types
MeSH terms
Grants and funding
LinkOut - more resources
Full Text Sources
Other Literature Sources
Medical