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. 2021 Jun;21(6):37-50.
doi: 10.1080/15265161.2020.1863508. Epub 2021 Jan 27.

Design Bioethics: A Theoretical Framework and Argument for Innovation in Bioethics Research

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Design Bioethics: A Theoretical Framework and Argument for Innovation in Bioethics Research

Gabriela Pavarini et al. Am J Bioeth. 2021 Jun.

Abstract

Empirical research in bioethics has developed rapidly over the past decade, but has largely eschewed the use of technology-driven methodologies. We propose "design bioethics" as an area of conjoined theoretical and methodological innovation in the field, working across bioethics, health sciences and human-centred technological design. We demonstrate the potential of digital tools, particularly purpose-built digital games, to align with theoretical frameworks in bioethics for empirical research, integrating context, narrative and embodiment in moral decision-making. Purpose-built digital tools can engender situated engagement with bioethical questions; can achieve such engagement at scale; and can access groups traditionally under-represented in bioethics research and theory. If developed and used with appropriate rigor, tools motivated by "design bioethics" could offer unique insights into new and familiar normative and empirical issues in the field.

Keywords: Design bioethics; empirical bioethics; epistemology; games; videogames; young people.

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Conflict of interest statement

No potential conflict of interest was reported by the author(s).

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Figure 1.
Using digital tools to investigate adolescents’ perspectives on the ethics of digital phenotyping for mental health.

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