Competing interests: We have read and understood BMJ policy on declaration of interests and declare the following interests: LS, CB, and CMB receive financial support in the form of grants from the Cambia Health Foundation, the John A Hartford Foundation, the New York State Health Foundation, the Department of Health and Human Services Office of the National Coordinator for Health Information Technology, and the Agency for Health Care Quality and Research. LS serves on the BMJ patient advisory panel and on the volunteer board of directors for the National Brain Tumor Society. MH is funded by several public research grants from NordForsk, Forte (the Swedish research council for health, working life and welfare), and AFA.