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. 2021 Jul-Sep;44(3):268-278.
doi: 10.1097/ANS.0000000000000359.

Symptom Monitoring in Children With Life-Threatening Illness: A Feasibility Study Using mHealth

Jacqueline Vaughn  1 , Nirmish Shah, Sharron L Docherty, Qing Yang, Ryan J Shaw
Affiliations

Symptom Monitoring in Children With Life-Threatening Illness: A Feasibility Study Using mHealth

Jacqueline Vaughn et al. ANS Adv Nurs Sci. 2021 Jul-Sep.

Abstract

Children with life-threatening illness (C-LTI) experience considerable symptom distress. Mobile technology may offer opportunities to better obtain symptom data that will lead to better symptom management. A mixed-methods study was conducted to explore the feasibility of monitoring and visualizing symptoms using 2 mobile health devices in C-LTI. Participants engaged with the Apple Watch 56% and recorded in the study app 63% of their study days. Our findings showed feasibility of using mobile technology for monitoring symptoms and further explored opportunities to visualize these data showing symptom occurrences, patterns, and trajectories in C-LTI.

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Conflict of interest statement

Conflicts of Interest: Dr. Shah reports GBT—consultant, research, speaker; Alexion— speaker; Novartis – consultant, research, speaker; Bluebird bio – consultant. The remaining authors have no financial relationships relevant to this article to disclose. The remaining authors have no competing interests to declare.

Figures

Figure 1
Figure 1
a. Study Symptom App showing the text list of symptoms and the Intensity Rating Scale. b. The symptom emoji added to the study app.
Figure 2.
Figure 2.
Empirical Summary Plot of Apple Watch and Study App Engagement
See this image and copyright information in PMC

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