Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
. 2021 Sep;77(9):3585-3599.
doi: 10.1111/jan.14801. Epub 2021 Feb 25.

Effectiveness of self-management programmes for adolescents with a chronic illness: A systematic review

Jaunna Gauci  1   2 , Jacqueline Bloomfield  3 , Sharon Lawn  4 , Susan Towns  1   2 , Katharine Steinbeck  2   5
Affiliations

Effectiveness of self-management programmes for adolescents with a chronic illness: A systematic review

Jaunna Gauci et al. J Adv Nurs. 2021 Sep.

Abstract

Aim: To assess what is known about the effectiveness of face-to-face self-management programmes designed specifically for adolescents (10-19 years) with a chronic illness.

Design: A systematic review and synthesis without meta-analysis (SWiM).

Data sources: Six international web-based reference libraries were searched with a date range of 1946 to July 2020.

Review method: The PRISMA statement and SWiM guideline were used for reporting the methods and results. The PICO format was used to develop a focused clinical question and the eligibility criteria of our review. Quality assessment of the included studies was performed using the Cochrane Effective Practice Organisation of Care criteria.

Results: Eight studies (four randomized controlled trials and four descriptive designs) met the inclusion criteria and were published between 2003 and 2017. Results of the review: Three studies demonstrated measures of illness control which showed initial improvements in adherence as a result of the interventions but failed to demonstrate sustained adherence over time. Booster sessions were identified as an effective strategy to improve adherence, but were often omitted.

Conclusions: There is a limited body of evidence on the effectiveness of self-management programmes specifically developed for adolescents with a chronic illness, an important but under researched area. Future research lies in the development of more rigorous studies that focus on quantitative outcome measures for evaluating the effectiveness of self-management programmes to guide the development of future programmes.

Impact: It is crucial for adolescents with a chronic illness to develop independence and the self-management skills required to effectively manage their chronic condition as they transition to adulthood. On current evidence, in planning future self-management interventions should include booster sessions. Nurses with additional training and experience have a key role in supporting adolescents with a chronic illness to develop self-management skills as they assume responsibility for their own healthcare.

Keywords: adolescent; chronic illness; concordance; nursing; patient compliance; patient education; self-management; systematic review; therapy adherence.

PubMed Disclaimer

References

REFERENCES

    1. Aldiss, S., Ellis, J., Cass, H., Pettigrew, T., Rose, L., & Gibson, F. (2015). Transition from child to adult care-'it's not a one-off event’: Development of benchmarks to improve the experience. Journal of Pediatric Nursing, 30(5), 638-647. https://doi.org/10.1016/j.pedn.2015.05.020
    1. Aronson, J. K. (2007). Compliance, concordance, adherence. British Journal of Clinical Pharmacology, 63(4), 383-384. https://doi.org/10.1111/j.1365-2125.2007.02893.x
    1. Barlow, J., Wright, C., Sheasby, J., Turner, A., & Hainsworth, J. (2002). Self-management approaches for people with chronic conditions: A review. Patient Education and Counseling, 48(2), 177-187. https://doi.org/10.1016/S0738-3991(02)00032-0
    1. Batista, M. A., Vekić, A. M., Malenical, M., Kukuruzović, M., & Begovac, I. (2015). Coping skills in children with epilepsy-evaluation of cognitive behavioral therapy intervention. Acta Clinica Croatica, 54(4), 467-474.
    1. Battersby, M., Von Korff, M., Schaefer, J., Davis, C., Ludman, E., Greene, S. M., Parkerton, M., & Wagner, E. H. (2010). Twelve evidence-based principles for implementing self-management support in primary care. Joint Commission Journal on Quality and Patient Safety, 36(12), 561-570. https://doi.org/10.1016/S1553-7250(10)36084-3

Publication types

LinkOut - more resources