A Review of the State of the Science of HIV and Stigma: Context, Conceptualization, Measurement, Interventions, Gaps, and Future Priorities
- PMID: 33654005
- PMCID: PMC9208366
- DOI: 10.1097/JNC.0000000000000237
A Review of the State of the Science of HIV and Stigma: Context, Conceptualization, Measurement, Interventions, Gaps, and Future Priorities
Abstract
Stigma is a fundamental cause of health inequities. As such, stigma is a major barrier to HIV prevention, care, and treatment. This review will examine the concept of stigma, explicating the mechanisms of action of HIV-related stigma while also examining intersectional stigma and structural stigma. Instruments to measure HIV-related stigma and its mechanisms of action, as well as stigma enacted and experienced by HIV health care providers, will also be reviewed. This article will conclude with a review of stigma interventions, gaps in the literature, and priorities for future HIV, intersectional, and structural stigma research.
Copyright © 2021 Association of Nurses in AIDS Care.
Conflict of interest statement
Disclosures
The authors report no real or perceived vested interests related to this article that could be construed as a conflict of interest. As with all peer-reviewed manuscripts published in
Figures

Similar articles
-
Measuring HIV-related stigma among healthcare providers: a systematic review.AIDS Care. 2017 Nov;29(11):1337-1345. doi: 10.1080/09540121.2017.1338654. Epub 2017 Jun 9. AIDS Care. 2017. PMID: 28599599
-
HIV-Related Intersectional Stigma and Discrimination Measurement: State of the Science.Am J Public Health. 2022 Jun;112(S4):S420-S432. doi: 10.2105/AJPH.2021.306639. Am J Public Health. 2022. PMID: 35763725 Free PMC article.
-
Stigma in Hospital: an examination of beliefs and attitudes towards HIV/AIDS patients, Istanbul.AIDS Care. 2020 Aug;32(8):1045-1051. doi: 10.1080/09540121.2020.1769833. Epub 2020 May 25. AIDS Care. 2020. PMID: 32449413
-
It's not "all in your head": critical knowledge gaps on internalized HIV stigma and a call for integrating social and structural conceptualizations.BMC Infect Dis. 2019 Mar 5;19(1):210. doi: 10.1186/s12879-019-3704-1. BMC Infect Dis. 2019. PMID: 30832613 Free PMC article.
-
From conceptualizing to measuring HIV stigma: a review of HIV stigma mechanism measures.AIDS Behav. 2009 Dec;13(6):1160-77. doi: 10.1007/s10461-009-9593-3. Epub 2009 Jul 28. AIDS Behav. 2009. PMID: 19636699 Free PMC article. Review.
Cited by
-
Client experiences with "Dynamic Choice Prevention," a model for flexible patient-centred HIV prevention delivery in rural Eastern Africa.J Int AIDS Soc. 2024 Jul;27(7):e26336. doi: 10.1002/jia2.26336. J Int AIDS Soc. 2024. PMID: 39020454 Free PMC article.
-
Public HIV stigma: Still common around the world.HIV Med. 2024 Jan;25(1):3-4. doi: 10.1111/hiv.13547. Epub 2023 Sep 25. HIV Med. 2024. PMID: 37749860 Free PMC article. No abstract available.
-
Assessing the Validity of the Social Impact Scale Among a Longitudinal Cohort of Adolescents and Young Adults Living With Perinatally Acquired HIV.J Acquir Immune Defic Syndr. 2024 May 1;96(1):11-17. doi: 10.1097/QAI.0000000000003390. J Acquir Immune Defic Syndr. 2024. PMID: 38301642 Free PMC article.
-
HIV Stigma Among a National Probability Sample of Adults with Diagnosed HIV-United States, 2018-2019.AIDS Behav. 2022 Jan;26(Suppl 1):39-50. doi: 10.1007/s10461-021-03414-6. Epub 2021 Aug 10. AIDS Behav. 2022. PMID: 34374919 Free PMC article.
-
Efficacy Testing of a Culturally Relevant Stigma Reduction Intervention for Women Living With HIV in Tanzania: Protocol for a Randomized Controlled Trial.J Assoc Nurses AIDS Care. 2025 Mar 26:10.1097/JNC.0000000000000538. doi: 10.1097/JNC.0000000000000538. Online ahead of print. J Assoc Nurses AIDS Care. 2025. PMID: 40138392 Free PMC article.
References
-
- AIDS United. (2016). PACHA focuses on stigma reduction. https://www.aidsunited.org/Blog/Default.aspx?id53481
-
- Andersson GZ, Reinius M, Erikson LE, Svedhem V, Esfahani FM, Deuba K, Rao D, Lyatuu GW, Giovenco D, & Ekstrom AM (2020). Stigma reduction interventions in people living with HIV to improve health-related quality of life. Laboratory Hematology, 7, e129–e140. doi: 10.1016/S2352-3018(19)30343-1 - DOI - PMC - PubMed
Publication types
MeSH terms
Grants and funding
LinkOut - more resources
Full Text Sources
Other Literature Sources
Medical
Research Materials