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Review
. 2021 Mar 8;23(4):23.
doi: 10.1007/s11926-021-00988-x.

Outcome Scores in Pediatric Rheumatology

Gabriella Giancane  1   2 , Silvia Rosina  1 , Alessandro Consolaro  1   2 , Nicolino Ruperto  3
Affiliations
Review

Outcome Scores in Pediatric Rheumatology

Gabriella Giancane et al. Curr Rheumatol Rep. .

Abstract

Purpose of review: Providing a summary of the latest research on outcome measures in juvenile idiopathic arthritis, childhood -onset systemic lupus erythematosus, and juvenile dermatomyositis.

Recent findings: A rational management of patients with pediatric rheumatic diseases requires the regular assessment of the level of disease activity and damage, as well as the evaluation of therapeutic response through validated and standardized outcome measures. Ideally, such tools should be simple, feasible, and easily applicable in routine care. Recently, there has been a great deal of effort to refine existing tools and devise novel outcome measures, aiming to address the various aspects of disease impact and to improve the reliability of research studies and clinical trials. The newest outcome tools in pediatric rheumatology have markedly enlarged the spectrum of health domains assessable in a standardized way, thus increasing the reliability of evaluation of clinical response and fostering future clinical trials.

Keywords: Activity assessment; Core set measures; Damage assessment; Definition of improvement; Disease state criteria; Outcome measures.

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References

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