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. 2021 Apr;35(4):783-784.
doi: 10.1111/jdv.17165.

Epidemiology of rare diseases is important

L Bruckner-Tuderman  1
Affiliations

Epidemiology of rare diseases is important

L Bruckner-Tuderman. J Eur Acad Dermatol Venereol. 2021 Apr.
No abstract available

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References

    1. Wakap SN, Lambert DM, Olry A et al. Estimating cumulative point prevalence of rare diseases: analysis of the Orphanet database. Eur J Hum Genet 2020; 28: 165-173.
    1. Bardhan A, Bruckner-Tuderman L, Chapple ILC et al. Epidermolysis bullosa. Nat Rev Dis Primers 2020; 6(1): 78.
    1. Baardman R, Yenamandra VK, Duipmans JC et al. Novel insights into the epidemiology of epidermolysis bullosa (EB) from the Dutch EB Registry: EB more common than previously assumed? J Eur Acad Dermatol Venerol 2021; 35: 995-1006.
    1. Valdez R, Ouyang L, Bolen J. Public health and rare diseases: oxymoron no more. Prevent Chronic Dis 2016; 13: E05.

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