Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
Review
. 2021;9(2):37-45.
doi: 10.1007/s40124-021-00238-9. Epub 2021 Mar 12.

How Do you Focus on Quality of Life When Kids Cannot Go to School or Outside?

Teresa Vente  1
Affiliations
Review

How Do you Focus on Quality of Life When Kids Cannot Go to School or Outside?

Teresa Vente. Curr Pediatr Rep. 2021.

Abstract

Purpose of review: This paper seeks to explore the definitions of quality of life and its application to pediatric research and clinical practice. This paper also highlights some of the imperfections in evaluating patient-reported outcomes designed to measure quality of life in pediatrics. Additionally, this paper explores some of the unique challenges in promoting quality of life during the COVID-19 pandemic.

Recent findings: There are numerous different measurement scales to examine quality of life in children of different ages, and with a variety of disease states.

Summary: Despite the number of quality of life measurement tools, not every patient population has a validated measure, including patients with palliative care needs. There is no consensus on how to incorporate findings from patient-reported outcomes into clinical practice recommendations. Professional organizations offer guidance and resources for families to encourage focus on quality of life during the COVID-19 pandemic.

Keywords: COVID-19; Health-related quality of life; Palliative care; Quality of life.

PubMed Disclaimer

Conflict of interest statement

Conflict of interestThe author declares no competing interests.

Figures

Fig. 1
Fig. 1
Relationship between domains of quality of life (QOL), health-related quality of life (HRQOL), and functioning disability and health (FDH)
See this image and copyright information in PMC

Similar articles

See all similar articles

References

    1. Boss RD, Kinsman HI, Donohue PK. Health-related quality of life for infants in the neonatal intensive care unit. J Perinatol. 2012;32(12):901–906. doi: 10.1038/jp.2012.82. - DOI - PubMed
    1. Huang IC, Revicki DA, Schwartz CE. Measuring pediatric patient-reported outcomes: good progress but a long way to go. Qual Life Res. 2014;23(3):747–750. doi: 10.1007/s11136-013-0607-2. - DOI - PMC - PubMed
    1. Fayed N, de Camargo OK, Kerr E, Rosenbaum P, Dubey A, Bostan C, Faulhaber M, Raina P, Cieza A. Generic patient-reported outcomes in child health research: a review of conceptual content using World Health Organization definitions. Dev Med Child Neurol. 2012;54(12):1085–1095. doi: 10.1111/j.1469-8749.2012.04393.x. - DOI - PubMed
    1. Eddy L, Cruz M. The relationship between fatigue and quality of life in children with chronic health problems: a systematic review. J Spec Pediatr Nurs. 2007;12(2):105–114. doi: 10.1111/j.1744-6155.2007.00099.x. - DOI - PubMed
    1. The WHOQOL Group. The World Health Organization Quality of Life Assessment (WHOQOL). Development and psychometric properties. Soc Sci Med. 1998;46:1569–1585. doi: 10.1016/S0277-9536(98)00009-4. - DOI - PubMed

LinkOut - more resources