Family-level impact of genetic testing: integrating health economics and ethical, legal, and social implications
- PMID: 33728981
- PMCID: PMC8488502
- DOI: 10.2217/pme-2021-0016
Family-level impact of genetic testing: integrating health economics and ethical, legal, and social implications
Abstract
Tweetable abstract Health economics and ELSI can be better integrated to consider the family impacts of genetic and genomic testing.
Keywords: ELSI; cascade screening; clinical implementation; cost–effectiveness; evaluation; family; patient-centered.
Conflict of interest statement
Research reported in this publication was supported by the National Human Genome Research Institute of the National Institutes of Health under Award Number K99HG011491. The content is solely the responsibility of the authors and does not represent the official views of the National Institutes of Health. The authors have no other relevant affiliations or financial involvement with any organization or entity with a financial interest in or financial conflict with the subject matter or materials discussed in the manuscript apart from those disclosed.
No writing assistance was utilized in the production of this manuscript.
References
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- McGuire AL, Fisher R, Cusenza Pet al.Confidentiality, privacy, and security of genetic and genomic test information in electronic health records: points to consider. Genet. Med. 10(7), 495 (2008). - PubMed
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- Parker LS, Sankar PL, Boyer J, Jean Mcewen JD, Kaufman D. Normative and conceptual ELSI research: what it is, and why it's important. Genet. Med. 21(2), 505–509 (2019). - PubMed
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