The Underdeveloped "Gift": Ethics in Implementing Precision Medicine Research
- PMID: 33825648
- PMCID: PMC8170672
- DOI: 10.1080/15265161.2021.1891352
The Underdeveloped "Gift": Ethics in Implementing Precision Medicine Research
Comment in
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Response to Open Peer Commentaries: Distinguishing the "Gift" from "Donation" as a Path toward Reciprocity and Relational Ethics.Am J Bioeth. 2021 Apr;21(4):W1-W3. doi: 10.1080/15265161.2021.1905102. Am J Bioeth. 2021. PMID: 33856287 Free PMC article. No abstract available.
Comment on
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Obligations of the "Gift": Reciprocity and Responsibility in Precision Medicine.Am J Bioeth. 2021 Apr;21(4):57-66. doi: 10.1080/15265161.2020.1851813. Epub 2020 Dec 16. Am J Bioeth. 2021. PMID: 33325811 Free PMC article.
References
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- Barnes MG, Lynch JA, Corsmo JJ, Witte DP, and Steele PE. 2012. Biobanking in pediatric research. In Pediatric biomedical informatics, 109–129. Dordrecht: Springer.
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- Condit CM, Korngiebel DM, Pfeifer L, Renz AD, Bowen DJ, Kaufman D, Mercer Kollar LM, and Edwards KL. 2015. What should the character of the researcher-participant relationship? Views of participants in a long-standing cancer genetic registry. IRB: Ethics and Human Research 37 (4):1–10. - PubMed
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- Goldenberg A, McGowan ML, and Fullerton SM. 2020. Necessary, but not sufficient: The limitations of inclusion as an end goal for addressing equity in genomic research. Oral Presentation. Annual Meeting of the American Society for Bioethics and Humanities. Virtual Conference.
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