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. 2022 Mar;29(1):44-53.
doi: 10.1007/s10880-021-09774-4. Epub 2021 Apr 10.

A Qualitative Exploration of Sleep Habits and Intervention Needs Among Youth with Cystic Fibrosis

Kimberly S Canter  1   2 , Abigail Strang  3   4 , Melanie Franklin  5 , Sophie Wilks  4   6 , Dana Geiser  4 , Katherine Okonak  7 , Janet A Deatrick  8 , Aaron Chidekel  3   4
Affiliations

A Qualitative Exploration of Sleep Habits and Intervention Needs Among Youth with Cystic Fibrosis

Kimberly S Canter et al. J Clin Psychol Med Settings. 2022 Mar.

Abstract

Evidence suggests that individuals with Cystic Fibrosis (CF) experience difficulties with sleep architecture and hygiene, although research is limited. There are currently no behavioral sleep interventions for youth with CF. The current study used qualitative methods to understand sleep needs and concerns among youth with CF, as well as to obtain feedback about potentially useful behavioral sleep intervention strategies. Semi-structured interviews were conducted with youth with CF between the ages of 11-17 and their parents. Themes were extracted from the data and will be used to inform the development of a brief behavioral sleep intervention for youth with CF. Youth and their parents described several CF-specific sleep concerns, often related to respiratory symptoms, and a number of strategies used to manage these concerns. They also described concerns that apply to the general population, including pervasive use of technology around bedtime. Many evidence-based behavioral sleep intervention strategies are acceptable to youth with CF, although modifications are appropriate to reduce time burden and address CF-specific needs. Youth with CF experience a number of disease-specific and more generalized sleep concerns which are likely amenable to behavioral intervention. Results from this study will be used to inform the development of a brief behavioral sleep intervention for youth with CF.

Keywords: Cystic fibrosis; Qualitative research; Sleep.

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References

    1. Becker, S. C., Langberg, J. M., & Byars, K. C. (2015). Advancing a biopsychosocial and contextual model of sleep in adolescence: A review and introduction to the special issue. Journal of Youth and Adolescence, 44(2), 239–270. - DOI
    1. Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. - DOI
    1. Calamaro, C. J., Mason, T. B. A., & Ratcliffe, S. J. (2009). Adolescents living the 24/7 lifestyle: Effects of caffeine and technology on sleep duration and daytime functioning. Pediatrics, 123(6), e1005–e1010. - DOI
    1. Chorney, D., Detweiler, M., Morris, T., & Kuhn, B. (2008). The interplay of sleep disturbance, anxiety, and depression in children. Journal of Pediatric Psychology, 33, 339–348. - DOI
    1. Cystic Fibrosis Foundation. (2018). Mental health coordinator award: Implementation of the depression and anxiety guidelines. https://www.cff.org/Our-Research/For-Researchers/Career-Development-Awar... .

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